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  • 5 Lesser-Known Signs of Sensory Overload in Autistic and ADHD Children

    When people picture sensory overload, they often imagine a child covering their ears, becoming distressed by a loud noise or having an obvious meltdown.

    But sensory overload doesn’t always look like that.

    For autistic and ADHD children, the early signs can sometimes look like hyperactivity, controlling behaviour, arguing, repetitive questioning or even becoming unusually quiet.

    And that matters.

    Because when we mistake overload for deliberate behaviour, our natural response can be to increase demands, correct the behaviour or introduce consequences — at precisely the moment the child may have the least capacity to cope with them.

    Here are five signs parents and teachers may not immediately connect with sensory overload.

    1. Suddenly becoming silly or extremely hyperactive

    Sometimes one of the first signs isn’t distress at all.

    A child might suddenly start:

    • running around
    • laughing excessively
    • making repetitive noises
    • touching everything
    • jumping or crashing into things
    • becoming increasingly excitable
    • struggling to listen or slow themselves down

    From the outside, they can actually look like they’re having a brilliant time.

    But sometimes their nervous system is becoming increasingly overwhelmed.

    For an ADHD child, this can be particularly difficult to recognise because increased movement and impulsivity may already be part of their everyday presentation.

    The useful question isn’t simply:

    “Why are they behaving like this?”

    Try asking:

    “What has their nervous system already dealt with today?”

    A busy classroom, bright lights, crowds, unfamiliar places, demands, smells, heat, hunger and social interaction can accumulate.

    The behaviour you see may be the end result of everything that came before it.

    2. Suddenly needing everything to be exactly right

    This is something we have experienced ourselves as parents.

    Something that wouldn’t normally matter suddenly becomes enormous.

    The socks feel wrong.

    Someone is sitting in the wrong seat.

    The food is presented differently.

    Plans have changed slightly.

    A particular object isn’t where it should be.

    Their sibling is making a noise they normally tolerate.

    It can appear as though the child has suddenly become incredibly controlling or unreasonable.

    But when somebody is already overloaded, their ability to tolerate additional sensory input, uncertainty and demandscan reduce dramatically.

    The tiny thing that finally causes the reaction may therefore not really be the problem.

    It may simply be the final thing their nervous system could cope with.

    3. Asking the same question repeatedly

    Parents of autistic and PDA children may recognise this one immediately.

    “Where are we going?”

    “What time are we leaving?”

    “Are we definitely leaving at 3?”

    “How long will it take?”

    “Who’s going to be there?”

    Then, two minutes later, the questions begin again.

    It’s easy to become frustrated and say:

    “I’ve already told you!”

    But repetitive questioning can sometimes be connected to anxiety and a need for predictability.

    When everything else feels uncertain or overwhelming, knowing exactly what is going to happen next can provide a small amount of control.

    So rather than repeatedly answering with increasing frustration, it may help to make the information more predictable.

    Depending on the child, that could mean a written plan, visual timetable, countdown, checking the plan together or simply acknowledging:

    “You really need to know what’s happening next today.”

    4. Becoming argumentative about absolutely everything

    This is one of the easiest signs to interpret as deliberate defiance.

    “Put your shoes on.”

    “No.”

    “Come downstairs.”

    “No.”

    “Do you want your drink?”

    “No!”

    Eventually parents can find themselves thinking:

    “Why does EVERYTHING have to become an argument?”

    Sometimes the answer may be that the child’s capacity has simply run out.

    When someone is already struggling to process sensory information, emotions, social expectations and demands, even a perfectly ordinary request can become one demand too many.

    This doesn’t mean every refusal is sensory overload, nor does it mean children never need boundaries.

    But when a child who was coping earlier suddenly begins resisting virtually everything, it can be worth looking beyond the individual behaviour.

    Ask:

    What changed?

    Are they hungry?

    Are they exhausted?

    Has the environment become noisier?

    Have there been lots of transitions?

    Have they been masking all day?

    Are there too many people around them?

    Has there simply been one demand after another?

    Sometimes reducing the pressure temporarily achieves far more than increasing it.

    5. Becoming unusually quiet

    This is perhaps the most important one.

    Because we tend to notice children when they become louder.

    We don’t always notice when they disappear.

    An overwhelmed child may:

    • stop talking
    • give very short answers
    • stare into space
    • withdraw from other people
    • hide underneath clothing or a hood
    • seek a dark or quiet space
    • stop responding to questions
    • appear exhausted
    • become unusually compliant
    • want to leave immediately

    There may be no screaming.

    No throwing things.

    No obvious meltdown.

    And because the child is no longer causing difficulty for anybody else, adults can mistakenly conclude:

    “They’re fine now.”

    They may not be.

    For some children, overload can involve withdrawing or shutting down rather than outwardly exploding.

    A quiet child can still be an overwhelmed child.

    Sensory overload is often cumulative

    One of the biggest things we’ve learned from raising neurodivergent children is that the final trigger doesn’t necessarily explain the reaction.

    Imagine a child’s capacity as a glass.

    School fills some of it.

    Noise adds some more.

    Social interaction adds more.

    A change of teacher.

    An uncomfortable uniform.

    A busy lunch hall.

    Having to concentrate.

    Masking.

    A journey home.

    A sibling making noise.

    Then somebody says:

    “Can you put your shoes away?”

    And everything explodes.

    To somebody who only witnessed the final 30 seconds, the reaction appears completely disproportionate.

    But they didn’t see the glass gradually filling throughout the day.

    Why recognising the early signs matters

    Once a child has reached full meltdown or shutdown, our options become much more limited.

    That’s why recognising their individual early warning signs can be so valuable.

    For one child it might be repetitive questioning.

    For another it might be pacing.

    Another becomes argumentative.

    Another becomes incredibly silly.

    Another suddenly stops speaking.

    Once you begin recognising your child’s pattern, you may be able to intervene earlier by reducing unnecessary demands, offering a quieter environment, allowing recovery time, providing familiar sensory supports or simply giving them space.

    The goal isn’t to prevent every difficult moment.

    That’s unrealistic.

    It’s to understand what the behaviour may be communicating before automatically assuming:

    “They’re just being difficult.”

    Behaviour is information

    This has been one of the biggest changes in how I personally think about parenting.

    Instead of immediately asking:

    “How do I stop this behaviour?”

    I’ve learned to sometimes ask:

    “What is this behaviour telling me?”

    That doesn’t mean abandoning boundaries or accepting unsafe behaviour.

    It means recognising that behaviour can give us information about a child’s capacity.

    And when we understand what’s happening underneath, we’re in a much better position to help.

    Because sensory overload doesn’t always look like a child covering their ears.

    Sometimes it looks like silliness.

    Sometimes it looks like arguing.

    Sometimes it looks like control.

    And sometimes…

    it looks like absolutely nothing at all.

    Need more support?

    At AskEllie, we share practical information and lived experience to help parents better understand autism, ADHD, PDA and the realities of raising neurodivergent children.

    If this sounds familiar, come by and see us at AskEllie.co.uk.

  • Could Your SEND Family Be Overpaying Council Tax? The Reductions Many Parents Don’t Know About

    If you have an autistic or disabled child, there’s a council tax reduction that is well worth knowing about.

    Many SEND families understandably assume council tax reductions are only available if you’re on a low income or receiving particular benefits.

    But that isn’t always the case.

    One scheme in particular — the Disabled Band Reduction Scheme — is based on how your home is used to meet the needs of a disabled person living there.

    And yes, this can include a disabled child.

    What is the Disabled Band Reduction Scheme?

    The Disabled Band Reduction Scheme can reduce your council tax bill if your home has certain features that are needed because somebody living there is substantially and permanently disabled.

    The qualifying person can be an adult or a child.

    Your property normally needs to contain at least one of the following:

    • A room, other than a bathroom, kitchen or toilet, which is mainly used by the disabled person and is required to meet their needs.
    • An additional bathroom or kitchen required to meet the disabled person’s needs.
    • Sufficient floor space inside the property for the disabled person to use a wheelchair indoors.

    Importantly, the room or feature needs to be essential or of major importance to the disabled person’s wellbeing because of the nature and extent of their disability.

    Can this apply to an autistic child?

    Potentially, yes.

    This is something SEND families can easily overlook because the word “disabled” is sometimes mistakenly interpreted as meaning somebody must have a physical disability or use a wheelchair.

    The scheme itself is not restricted to physical disability.

    However, having an autism diagnosis does not automatically qualify a household for the reduction.

    The important question is whether your home contains one of the qualifying features specifically because of your child’s disability and whether it meets the scheme’s requirements.

    For example, simply saying that your child benefits from having their own bedroom would not automatically establish entitlement.

    The particular use of the room and why it is required because of the child’s disability will matter.

    How much could it reduce your council tax by?

    If your household qualifies, your council tax is generally calculated as though your property were in the council tax band immediately below its actual band.

    For example, a Band D property would normally be charged at the Band C rate.

    If your property is already in Band A, you can still receive a reduction. The calculation is different because there isn’t a lower council tax band.

    This isn’t necessarily a tiny one-off discount either. Depending on your council tax band and local charges, the difference can be meaningful over time.

    This isn’t the same as Council Tax Reduction

    This is where things can become confusing.

    The Disabled Band Reduction Scheme and Council Tax Reduction are different things.

    Council Tax Reduction — sometimes called Council Tax Support — is generally a means-tested scheme administered by your local council for people on a low income.

    The rules and amount available can vary depending on where you live.

    So even if you don’t qualify for one scheme, you may qualify for another.

    There are also circumstances where particular people aren’t counted when calculating council tax, which can affect the amount a household has to pay.

    That is why it’s worth checking your individual circumstances rather than assuming you’re not eligible for anything.

    “But we both work…”

    Working does not automatically prevent you from qualifying for the Disabled Band Reduction Scheme.

    This is an important distinction.

    The disabled band reduction is concerned with the qualifying disabled person and the relevant features within the property — it isn’t simply a low-income benefit.

    Council Tax Reduction, on the other hand, usually does take household income and circumstances into account.

    So don’t dismiss everything under the heading of “council tax help” simply because someone in your household works.

    How do I apply?

    The Disabled Band Reduction Scheme is administered by your local council.

    Go to your council’s website and search for:

    Disabled Band Reduction Scheme

    You can also search:

    Council Tax Reduction

    because it’s worth checking whether your household may qualify for other help as well.

    Your council may ask you to explain the disability, identify the qualifying feature within your home and explain why that feature is required.

    They may also ask for supporting evidence or arrange to inspect the property.

    When completing an application, try not to simply write:

    “My child has autism and needs this room.”

    Explain what the room or feature is used for, why your child requires it because of their disability, how frequently it is used for that purpose, and what difficulty would arise without it.

    The practical detail matters.

    Don’t assume someone will tell you

    One of the recurring problems we hear from SEND families is that they discover financial support almost accidentally.

    DLA, Carer’s Allowance, council tax reductions, disability-related support and other entitlements all have different rules.

    Families can therefore spend years assuming:

    “Nobody told us about it, so we obviously aren’t entitled to it.”

    Unfortunately, that’s not a safe assumption.

    If you’re raising a disabled child, it is worth periodically checking what support your family may be entitled to — particularly when your child’s needs or your household circumstances change.

    The important takeaway

    Having an autistic or disabled child does not automatically mean you’ll receive a council tax reduction.

    But neither should you assume that you won’t qualify.

    If your home has been adapted or particular rooms or facilities are required because of your child’s disability, check the Disabled Band Reduction Scheme.

    If household finances are stretched, check Council Tax Reduction too.

    SEND families already absorb enormous additional financial and practical pressures.

    You shouldn’t be paying more than you’re legally required to simply because nobody told you to check.

    AskEllie provides information and support for SEND families. This article is general information rather than individual financial or legal advice.

  • The First-Week-Back Mistake We Used to Make as SEND Parents

    The first week back at school can be difficult for any family.

    But when you have an autistic, ADHD, PDA or otherwise neurodivergent child, getting through the school gates can sometimes feel like an achievement in itself.

    And as SEND parents, there was one mistake we made for a long time:

    We assumed that because our child had managed to stay in school, they must have been coping.

    We eventually learned that those are two very different things.

    “But school says they’ve been absolutely fine…”

    Many SEND parents will recognise this conversation.

    You collect your child from school and the teacher tells you:

    “They’ve had a lovely day.”

    “No problems here.”

    “They’ve been absolutely fine.”

    Perhaps they’ve completed their work, followed instructions, spoken to friends and appeared settled throughout the day.

    Then they get home.

    And everything changes.

    There may be shouting, crying or arguments.

    They might refuse food or suddenly become extremely particular about what they’ll eat.

    They may disappear into their bedroom, immediately reach for a screen or refuse to talk to anyone.

    Something seemingly tiny — the wrong cup, a sibling making a noise, being asked to change clothes — can trigger an enormous reaction.

    And as parents, it’s very easy to wonder:

    If they managed all day at school, why are they behaving like this with us?

    But that’s often the wrong question.

    A better question can be:

    How much energy did it take them to manage all day at school?

    Holding it together isn’t necessarily the same as coping

    Think about everything that can change when a SEND child returns to school.

    There may be a new timetable.

    Different teachers.

    Different classrooms.

    New expectations.

    Busy corridors.

    Uniform.

    Noise.

    Social interaction.

    Break times.

    Lunch halls.

    Transitions between lessons.

    Unpredictability.

    Constant instructions and demands.

    And after several weeks away from school, even familiar things can suddenly feel unfamiliar again.

    Some neurodivergent children may also mask or suppress signs of distress while they’re at school.

    From the outside, they can appear to be coping incredibly well.

    Internally, however, their capacity may be steadily disappearing.

    By the time they reach home — somewhere they feel safe enough to stop holding everything together — there may simply be nothing left.

    That’s why some families describe what is often called after-school restraint collapse.

    The child who apparently coped beautifully for six hours suddenly falls apart at home.

    The mistake we made after school

    This is the part I’ve had to learn as a parent.

    Our children would come home after managing an incredibly demanding school day…

    and we’d immediately give them another list of demands.

    “How was school?”

    “What did you do today?”

    “Who did you sit with?”

    “Have you got homework?”

    “Go and get changed.”

    “Put your shoes away.”

    “Come and eat.”

    “Turn that screen off.”

    Individually, none of these requests seems unreasonable.

    But imagine a child’s nervous system arriving home with only 2% battery remaining.

    Every question and instruction requires a little more energy.

    Eventually something seemingly insignificant becomes the final demand.

    And then everyone wonders why the child has exploded over being asked to put their shoes away.

    It probably wasn’t really about the shoes.

    We started treating after school as recovery time

    We gradually changed our approach.

    Especially during demanding periods such as the first week back, we try to reduce unnecessary expectations when the boys get home.

    That might mean fewer questions about school.

    It might mean allowing some quiet time before expecting conversation.

    It might mean a familiar safe food.

    For some children, gaming, YouTube, headphones, music or a favourite activity can provide predictable input and help them regulate.

    Sometimes they simply need to disappear into their room for a while.

    That doesn’t mean abandoning boundaries or allowing every behaviour.

    It means recognising that regulation may need to come before reasoning, conversation and additional demands.

    Once their nervous system has recovered, everything else can become much easier.

    Watch what happens outside school too

    One of the most important lessons we’ve learned is not to judge whether school is working solely by what happens inside the classroom.

    Look at the whole child.

    Has their sleep changed?

    Are Sunday evenings becoming increasingly difficult?

    Are they complaining about headaches or stomach aches?

    Are they exhausted after school?

    Are meltdowns becoming more frequent?

    Are they withdrawing from things they previously enjoyed?

    Has eating become harder?

    Are mornings becoming progressively more difficult?

    Are they repeatedly asking what will happen the following day?

    Are they beginning to say they can’t go back?

    One difficult evening after school doesn’t necessarily mean there’s a serious problem.

    The first few days back can simply be exhausting.

    But if distress is becoming a pattern or progressively worsening, it deserves attention.

    Don’t wait until a child is completely unable to attend before asking what needs to change.

    “They’re fine at school” doesn’t end the conversation

    Parents sometimes feel dismissed because school doesn’t witness the same behaviour.

    But both experiences can be true.

    A child can appear regulated at school and experience significant distress afterwards.

    Rather than arguing over which version of the child is the “real” one, schools and families should be asking why there is such a difference between environments.

    What demands are they managing?

    Are they masking?

    Are sensory demands too high?

    Do they have access to a trusted adult?

    Is there somewhere genuinely quiet they can regulate?

    Are transitions causing difficulty?

    Could their timetable temporarily be adjusted?

    Are reasonable adjustments actually being implemented?

    What could reduce the amount of energy required simply to survive the school day?

    Those questions are far more useful than:

    “Well, we don’t see that behaviour here.”

    For PDA children, the demand load can be particularly significant

    For children with a PDA profile, returning to school can involve an enormous increase in perceived demands.

    Wake up.

    Get dressed.

    Eat breakfast.

    Leave the house.

    Get into the car.

    Enter school.

    Go to registration.

    Move classrooms.

    Complete work.

    Answer questions.

    Follow instructions.

    Socialise.

    Eat at a particular time.

    Return to lessons.

    Come home.

    Homework.

    Dinner.

    Bed.

    What looks like an ordinary school day can actually contain hundreds of demands and transitions.

    Reducing unnecessary demands outside school can therefore give a child more capacity for the things that genuinely cannot be avoided.

    Success shouldn’t only mean attendance

    This is particularly important during the first week back.

    For one child, success might be completing a full school day.

    For another, it might be entering the building for an hour.

    For another, meeting their trusted adult at the gate.

    For a child experiencing significant school-related distress, simply getting dressed and attempting the journey might represent enormous progress.

    We need to be careful that our desire to achieve attendance doesn’t cause us to overlook what the child is communicating.

    Because attendance and genuine access to education are not always the same thing.

    The question I ask differently now

    For years, SEND parents have been conditioned to ask:

    “Did they manage school today?”

    I’ve started thinking about it differently.

    I want to know:

    “How much did today cost them?”

    Because sometimes the child who apparently had the best day at school is the child who comes home completely depleted.

    And sometimes the meltdown we see at 4pm actually began hours earlier — we just couldn’t see it yet.

    So if your child has returned to school this week and they’re suddenly more exhausted, emotional, angry, withdrawn or dysregulated at home, don’t immediately assume they’re being difficult.

    Be curious.

    Give them space.

    Reduce what can reasonably be reduced.

    Watch for patterns.

    And if those patterns continue, talk to school about what might need to change.

    Because getting a SEND child into school is only one part of the picture.

    The bigger goal should always be helping them access education without repeatedly having to sacrifice their wellbeing just to get through the day.

    Sometimes the question isn’t “Did they cope?”

    It’s “What did coping cost them?”

    AskEllie supports families navigating SEND, school attendance difficulties, EBSA, EHCPs and disputes with schools and Local Authorities. You can find further information and private support at AskEllie.co.uk.

  • Why So Many Mothers of Neurodivergent Children Feel Permanently Exhausted

    There is a kind of tiredness that sleep does not always fix.

    Many mothers of autistic, ADHD, PDA and other neurodivergent children describe feeling permanently exhausted. Not simply physically tired, but mentally overloaded, emotionally stretched and constantly alert.

    From the outside, it can be difficult to understand.

    A parent may not have been running around all day. They may have spent much of the day at home. Their child may even have appeared calm.

    But that does not mean their brain has had a break.

    For many SEND mums, the real exhaustion comes from the invisible mental load they carry every single day.

    Your brain is rarely completely off duty

    For many parents of neurodivergent children, the day starts before their child has even got out of bed.

    You may already be thinking:

    Will they manage school today?

    Did they sleep properly?

    Will they eat breakfast?

    Will their clothes feel uncomfortable?

    Will something unexpected trigger anxiety before you even leave the house?

    What time do we need to start getting ready so we do not rush?

    Do I mention the appointment now, or will knowing about it make the whole morning harder?

    These calculations can become so normal that we barely notice we are making them.

    But they take energy.

    A lot of energy.

    Everything becomes a calculation

    When you are parenting a child who struggles with demands, sensory overload, anxiety or transitions, even everyday requests can require thought.

    You might find yourself wondering:

    “If I ask them to shower now, will that cause an escalation?”

    “Should I give them another ten minutes before we leave?”

    “Is this the right moment to remind them about homework?”

    “If I say no to this request, will they be able to manage the disappointment?”

    “Are they becoming dysregulated, or are they simply tired?”

    This does not mean parents are walking on eggshells because they are frightened of their child.

    It often means they have learned to recognise the early signs of overload.

    They are constantly trying to prevent a difficult situation from becoming an impossible one.

    That level of vigilance is exhausting.

    You become an expert in somebody else’s nervous system

    Parents often become incredibly skilled at recognising subtle changes that other people miss.

    A facial expression.

    A change in tone.

    A sudden increase in movement.

    Becoming unusually quiet.

    Repeating the same question.

    Refusing something they would normally tolerate.

    These can all be signs that a child’s capacity is running low.

    Over time, parents learn to intervene before the child reaches breaking point.

    They change their language.

    Reduce demands.

    Offer food.

    Create space.

    Cancel plans.

    Adjust expectations.

    Find headphones.

    Turn the lights down.

    Make the journey shorter.

    And frequently, nobody else sees any of this.

    They simply see a child who “managed”.

    What they may not see is the parent quietly making twenty adjustments in the background to make that possible.

    Then there is the SEND admin

    Parenting a neurodivergent child can also come with an extraordinary amount of administration.

    There may be:

    School emails.

    EHCP paperwork.

    Annual reviews.

    DLA or PIP forms.

    Medical appointments.

    CAMHS referrals.

    Occupational therapy.

    Speech and language reports.

    Meetings with SENCOs.

    Local authority correspondence.

    Tribunal paperwork.

    Transport arrangements.

    Prescription requests.

    Waiting lists.

    And endless phone calls.

    All of this exists alongside normal family life.

    Dinner still needs making.

    Laundry still needs doing.

    Bills still need paying.

    Other children still need attention.

    Work still needs to happen.

    Yet SEND parents are frequently expected to become experts in education law, disability benefits, healthcare systems and their child’s individual needs almost overnight.

    The phone becomes something you dread

    Many SEND parents will recognise this feeling.

    The school number appears on your phone.

    Your stomach drops.

    Before you answer, your brain has already run through the possibilities.

    Are they dysregulated?

    Have they been excluded?

    Do they need collecting?

    Has there been an incident?

    Are they refusing lessons?

    Have they hurt themselves?

    Has somebody hurt them?

    Even on days when nothing happens, the possibility of that call can keep part of your nervous system on alert.

    You are never quite fully switched off.

    Even when your child is settled, you may not be

    Eventually, your child goes to bed.

    Or they finally settle with their game, television programme or favourite activity.

    And theoretically, this is your chance to relax.

    Except your brain starts thinking about tomorrow.

    School.

    Appointments.

    Their future.

    Friendships.

    Whether they are falling behind.

    Whether the school understands them.

    Whether you are doing enough.

    Whether you handled that meltdown correctly.

    Whether you should have pushed harder.

    Whether you pushed too hard.

    Whether they will ever be independent.

    Whether the support they need will still exist when they are older.

    That is an enormous emotional load to carry.

    Being somebody’s safe person is a privilege — and exhausting

    Many neurodivergent children hold themselves together outside the home.

    They mask at school.

    They comply.

    They hide anxiety.

    They suppress sensory distress.

    Then they come home to the person they trust most.

    And everything comes out.

    The tears.

    The anger.

    The shutdown.

    The swearing.

    The refusal.

    The exhaustion.

    Parents are sometimes told:

    “They’re fine at school, so the problem must be at home.”

    But sometimes the opposite is true.

    Home is where the child finally feels safe enough to stop holding everything in.

    Being your child’s safe person is incredibly important.

    But absorbing that emotional release day after day can also be exhausting.

    Both things can be true.

    Even accepting help can become another job

    People often tell SEND mums:

    “You need to ask for help.”

    That sounds simple.

    But help is only helpful if the person understands the child.

    Sometimes before another person can take over, the parent has to explain:

    What they will eat.

    What they will not eat.

    Which cup they will drink from.

    What sounds upset them.

    How much notice they need before leaving.

    What language triggers demand avoidance.

    How to respond if they shut down.

    What their medication is.

    Which routines cannot change.

    How to recognise when they are becoming overwhelmed.

    And what definitely not to do.

    By the time you have explained all of that, arranging the help can feel more exhausting than doing it yourself.

    “Make time for yourself” is not always useful advice

    Self-care matters.

    Parents need rest.

    But sometimes telling an exhausted SEND parent to “make more time for yourself” misses the point entirely.

    Because the question becomes:

    When?

    If your child struggles to sleep, where does that time come from?

    If school attendance is unpredictable, where does it come from?

    If you have nobody who can safely care for your child, where does it come from?

    If every break requires organising ten other things first, is it actually a break?

    SEND parents do need support.

    But sometimes what they need most is not another suggestion for a bubble bath.

    They need practical help.

    Respite.

    Appropriate schooling.

    Reliable healthcare.

    Understanding employers.

    Supportive families.

    A local authority that responds.

    And professionals who listen before families reach crisis.

    Mental load is still load

    One of the most important things SEND parents can understand is that mental exhaustion is real exhaustion.

    You can feel completely drained without having physically done very much.

    Constant decision-making is tiring.

    Constant vigilance is tiring.

    Advocating is tiring.

    Managing unpredictability is tiring.

    Being interrupted constantly is tiring.

    Having responsibility for another person’s regulation is tiring.

    And trying to appear calm while doing all of that is tiring too.

    Loving your child does not mean every day has to feel easy

    Parents can sometimes feel guilty admitting they are exhausted.

    They worry that saying parenting is hard somehow means they love their child less.

    It does not.

    You can adore your child and still find some days incredibly difficult.

    You can celebrate who they are while wishing the systems around them worked better.

    You can understand their behaviour and still feel overwhelmed by it.

    You can be grateful and exhausted at the same time.

    Those things are not contradictions.

    They are simply part of being human.

    What might actually help?

    There is no single answer, because every family is different.

    But some parents find it helpful to reduce unnecessary decisions where possible.

    Use predictable routines when they help.

    Prepare for difficult transitions.

    Share responsibilities rather than holding everything in one person’s head.

    Keep important information written down so it does not have to be constantly remembered.

    Accept “good enough” rather than trying to do everything perfectly.

    And when your child is regulated, remember that you may need time to regulate too.

    Most importantly, parents need systems that recognise family wellbeing as part of supporting the child.

    Because we cannot continue expecting families to absorb unlimited pressure indefinitely.

    A final message to SEND mums

    If you are exhausted even though you feel like you “shouldn’t be”…

    If your brain never seems to stop…

    If you feel like you are permanently anticipating the next problem…

    There may be far more going on than anybody around you can see.

    You are not simply managing appointments, school and behaviour.

    You may be carrying your child’s routines, anxieties, sensory needs, education, healthcare, future and emotional safety in your head all at once.

    That is a lot.

    And perhaps instead of asking SEND mothers why they are so tired, we should be asking a different question:

    Why are we expecting families to carry so much of this alone?

  • AI, EHCPs and SEND Funding: What Parents Need to Know

    Artificial intelligence is moving into almost every part of our lives. Now, increasingly sophisticated digital tools are appearing within the SEND system too.

    For parents of children with special educational needs and disabilities, that raises an important question:

    Could software or AI be influencing your child’s EHCP or the funding attached to it?

    The answer requires some nuance.

    Technology has enormous potential to improve an overstretched SEND system. But when decisions affect a disabled child’s education, provision and funding, families deserve to understand exactly how those decisions are being made.

    Why are SEND parents talking about this?

    Recent attention has focused on technology supplied by Imosphere, a private company providing digital SEND tools to local authorities.

    Imosphere describes its SEND technology as connecting needs, plans, funding and oversight. The company says its systems are designed to produce clearer and more consistent decision-making while supporting professional judgement. It also says more than £186 million is allocated annually through its banding tool. 

    This matters because funding decisions aren’t abstract numbers.

    They can ultimately affect the support available around a child.

    Is AI deciding children’s EHCP funding?

    We need to be careful here.

    There is an important difference between:

    software assisting a professional with a decision

    and

    software making the decision itself.

    Digital funding systems aren’t entirely new. For example, Staffordshire County Council announced in 2022 that it was using an Imosphere education banding tool to calculate top-up funding based upon needs identified within children’s EHCPs. 

    Imosphere currently says its technology supports councils with transparent funding decisions, EHCP quality, workflows and oversight. It describes its systems as supporting professional judgement rather than replacing it. 

    So parents shouldn’t assume that a computer is independently deciding their child’s EHCP.

    But that doesn’t mean there aren’t legitimate questions to ask.

    The really important question: who actually made the decision?

    This is where things become much more interesting.

    Two education barristers, Alice de Coverley and Jim Hirschmann, have examined the growing use of AI around education and EHCPs.

    They warned of the risk that professionals could effectively fail to exercise their own discretion if they rely too heavily upon algorithmic or AI-generated material.

    They predicted public-law challenges where algorithms or AI are used to generate EHCPs without adequate human oversight. 

    In plain English:

    Putting a human being at the end of an automated process doesn’t necessarily make the process genuinely human.

    If software produces an analysis or recommendation and somebody simply approves it without properly considering the individual child’s evidence, that’s very different from a professional genuinely exercising their judgement.

    Five questions SEND parents should be asking

    If you are concerned that digital or automated systems may have played a role in your child’s EHCP or funding decision, reasonable questions include:

    1. Was automated software or AI used at any stage of my child’s EHCP or funding decision?
    2. What information was entered into or analysed by the system?
    3. Did the system calculate or recommend a funding band or level?
    4. Who reviewed the recommendation and what evidence did they personally consider?
    5. Could the decision-maker depart from the software’s recommendation — and if so, did they consider doing so in my child’s case?

    The purpose isn’t to assume something improper has happened.

    It’s to understand how the decision was reached.

    AI itself isn’t the enemy

    This distinction is incredibly important.

    At AskEllie, we’re not opposed to artificial intelligence.

    Quite the opposite.

    We believe AI has the potential to transform access to information for SEND families.

    The SEND system is extraordinarily complicated. Parents are expected to understand lengthy EHCPs, professional reports, legislation, correspondence, annual reviews and appeal processes while simultaneously caring for their child.

    Technology can help make that information understandable.

    The issue isn’t simply:

    “Should AI be used?”

    The better question is:

    “Who is AI empowering?”

    This is one of the reasons we created AskEllie

    We could see where technology was heading.

    If local authorities, professionals and organisations were going to have increasingly sophisticated technology available to analyse information and support decision-making, we believed parents needed powerful tools on their side of the table too.

    That’s why we’ve developed AskEllie’s EHCP support technology.

    Our tools are designed to help parents understand their child’s EHCP, examine the wording, identify potential gaps and weaknesses, understand correspondence and prepare the questions they may need to ask.

    AI shouldn’t replace the parent.

    It should make the parent better informed.

    And it shouldn’t replace lawyers, SEND professionals or expert advice where those are required either.

    It should help families understand a system that has traditionally been extremely difficult to navigate.

    AI can potentially make EHCPs better

    There is another side to this conversation.

    Used responsibly, AI could help professionals identify inconsistencies, reduce administrative workloads, extract relevant evidence from lengthy reports and improve the quality of plans.

    Imosphere itself reports benefits including faster EHCP drafting and review processes and greater consistency in funding decisions. These are the company’s reported outcomes rather than independent guarantees, but they demonstrate why councils are interested in this technology. 

    And in a SEND system struggling with delays and enormous workloads, reducing unnecessary administration could be valuable.

    The danger comes when efficiency becomes more important than individuality.

    An EHCP exists for one particular child.

    That child cannot simply become a data point.

    SEND funding makes transparency even more important

    Local authorities are operating under enormous financial pressure.

    BCP Council, for example, has reported substantial financial pressures associated with its SEND High Needs expenditure and has approved borrowing connected with expenditure exceeding available government grant. 

    That doesn’t mean a digital funding system is being used to reduce children’s provision.

    We should not make that leap without evidence.

    But it does demonstrate why transparency matters.

    When financial pressure, automated funding tools and statutory decisions about disabled children meet in the same system, parents need confidence that their individual child’s needs remain the starting point.

    The future of SEND will almost certainly involve technology

    This conversation is unlikely to disappear.

    Imosphere is already discussing the potential role of technology and assistive AI in future SEND workflows, including possible Individual Support Plans under SEND reform. 

    The question therefore isn’t whether SEND will become more digital.

    It already is.

    The challenge is ensuring that technology makes the system more accountable, more transparent and more personalised — not less.

    The AskEllie position

    Our position is simple.

    AI should assist human judgement, never quietly replace it.

    Parents should know when significant automated tools have been involved in decisions concerning their child.

    Professionals should remain accountable for those decisions.

    Children must continue to be treated as individuals.

    And families should have access to technology capable of helping them understand and challenge the system too.

    Because if increasingly sophisticated technology is going to sit on one side of the table…

    SEND parents shouldn’t be expected to sit on the other side armed with nothing more than a folder full of paperwork.

  • How to Speak to a Child With PDA: 5 Things We’ve Learned as Parents

    If you’re parenting a child with PDA, you’ve probably experienced moments where a completely ordinary request suddenly becomes anything but ordinary.

    “Put your shoes on.”

    “Come downstairs for dinner.”

    “Time to turn the game off.”

    “Go and brush your teeth.”

    For many children, these are everyday instructions. But for a child with a PDA profile (Pathological Demand Avoidance), the way a request is communicated can make an enormous difference.

    Sometimes it isn’t necessarily what you’re asking.

    It’s how the demand feels to the child receiving it.

    As parents, we’ve learned that communication with a PDA child often requires us to rethink many of the traditional parenting approaches we were taught.

    Here are five things that can help.


    1. Sometimes, Fewer Words Are Better

    When a child is already overwhelmed, parents naturally want to explain.

    We explain why something needs to happen.

    We reassure.

    We negotiate.

    We repeat ourselves.

    But all of those extra words can unintentionally create even more pressure.

    A child who’s already dysregulated may simply not have the capacity to process everything you’re saying.

    Sometimes the most effective approach is:

    Short. Calm. Clear.

    Then stop talking.

    Give them time to process what you’ve said.

    Silence can feel uncomfortable as a parent because we’re desperate to resolve the situation.

    But filling that silence with more instructions, questions and explanations can sometimes make things harder.


    2. Build in Buffer Time Between Activities

    Transitions can be particularly difficult for some PDA children.

    Moving from:

    Gaming → dinner

    Home → school

    TV → bedtime

    Bedroom → leaving the house

    can involve suddenly stopping something predictable and moving towards something less predictable.

    Instead of:

    “Turn that off. We’re leaving now.”

    Try creating some warning around the transition.

    For example:

    “We’re probably going to start getting ready in about ten minutes.”

    Then allow some processing time.

    Some families find visual timers, routines or gentle reminders helpful.

    Others find these increase pressure.

    That’s an important point about PDA:

    There isn’t one strategy that works for every child.

    The aim is to understand what reduces pressure for your child.


    3. Choices Can Help — But Too Many Choices Can Backfire

    One of the most common pieces of advice given to PDA parents is:

    “Give them choices.”

    And there is good reasoning behind this.

    Having some autonomy can reduce the feeling that something is being imposed upon them.

    Instead of:

    “Go and brush your teeth.”

    you might try:

    “Would you rather brush your teeth before or after you get changed?”

    But there’s another side to this.

    Too many choices can become overwhelming.

    If a child is already anxious or dysregulated, asking them to choose between five different options can create another decision they now have to manage.

    Sometimes two simple choices are enough.

    And importantly, low-demand parenting doesn’t mean handing all responsibility to the child.

    Children still need adults who feel safe, predictable and capable of guiding them.

    Think calm leadership rather than control.


    4. Change the Language, Not Necessarily the Goal

    Sometimes you can keep exactly the same goal while completely changing the way you approach it.

    Instead of:

    “You need to put your shoes on.”

    You might try:

    “I wonder where those shoes have disappeared to?”

    Instead of:

    “Get ready. We’re leaving.”

    Try:

    “I’m going to start getting ready.”

    Instead of:

    “You have to tidy this up.”

    You could try:

    “I reckon we could get this cleared ridiculously quickly together.”

    Humour can also be incredibly powerful.

    Turning something into a joke, challenge, game or shared activity can sometimes remove the feeling of confrontation.

    The destination hasn’t necessarily changed.

    You’ve simply taken a different road to get there.


    5. Don’t Match Their Energy

    This may be one of the hardest things to do.

    Your child’s anxiety rises.

    They start arguing.

    You become stressed.

    You explain more.

    They become louder.

    You become firmer.

    Suddenly everyone is escalating.

    As parents, we’re human. Our nervous systems respond too.

    But when possible, try to move in the opposite direction.

    If they become louder…

    Become quieter.

    If they become faster…

    Become slower.

    If they become overwhelmed…

    Use fewer words.

    You’re trying to communicate something very important without necessarily saying it:

    “I’m calm. I’m still here. This situation is manageable.”

    That sense of safety can sometimes be far more powerful than another instruction.


    PDA Parenting Doesn’t Mean Having No Boundaries

    This is an important distinction.

    A low-demand or PDA-informed approach isn’t simply:

    “Let the child do whatever they want.”

    Children still need boundaries.

    They still need adults to keep them safe.

    They still need guidance.

    The difference is recognising that traditional approaches based heavily on compliance, consequences, rewards or increasing pressure may not always produce the intended result for a child with a PDA profile.

    If increased pressure increases anxiety, which then increases avoidance, adding more pressure can create a cycle that becomes increasingly difficult for everyone.

    The question becomes:

    How can we achieve what needs to happen while creating the least unnecessary pressure possible?


    What About the Real World?

    This is something parents understandably worry about.

    You might think:

    “That’s fine at home, but the rest of the world isn’t going to communicate like this.”

    That’s true.

    Teachers, employers, strangers and other adults won’t necessarily understand PDA.

    But supporting a child appropriately now isn’t about protecting them from every demand forever.

    It’s about helping them develop regulation, confidence, communication and self-understanding so they are better equipped to navigate those demands as they grow.

    We shouldn’t deliberately make childhood harder simply because adulthood may sometimes be difficult.


    One Trusted Adult Can Make an Enormous Difference

    One thing we hear repeatedly from SEND families is the importance of relationships.

    A teacher who understands.

    A teaching assistant who notices the warning signs.

    A family member who doesn’t immediately escalate.

    A professional who listens.

    For a child who frequently feels misunderstood or controlled, having even one adult who genuinely understands themcan make an enormous difference.

    Sometimes the relationship comes before the strategy.


    And Parents Won’t Get It Right Every Time

    Neither do we.

    There will be mornings when you’re late.

    Days when you’re exhausted.

    Moments when you’ve asked nicely seventeen times and eventually find yourself shouting:

    “JUST PUT YOUR SHOES ON!”

    That doesn’t erase everything you’re trying to do.

    PDA-informed parenting isn’t about becoming a perfectly calm parent who never gets frustrated.

    It’s about gradually understanding your child better.

    Sometimes you’ll recognise the trigger beforehand.

    Sometimes you’ll realise afterwards.

    Both are learning.


    The Biggest Shift: Understanding the “Why”

    Perhaps the biggest change comes when we stop asking:

    “How do I make my child comply?”

    and start asking:

    “What is making this difficult for them right now?”

    Is it anxiety?

    A transition?

    Sensory overload?

    Loss of autonomy?

    Exhaustion?

    Uncertainty?

    Too many instructions?

    Understanding the reason doesn’t mean every behaviour suddenly becomes acceptable.

    It simply gives us a better chance of responding effectively.

    Because when we understand the why behind behaviour, we can start changing what happens next.


    A Final Note About PDA

    PDA is commonly described as a profile associated with autism, but terminology, recognition and clinical practice around PDA remain debated and can vary between professionals and services.

    Not every autistic child who avoids demands has a PDA profile, and strategies that work brilliantly for one child may be completely ineffective for another.

    The goal isn’t to find a perfect parenting formula.

    It’s to understand the individual child standing in front of us.

    And sometimes the smallest change in language can make the biggest difference.

    What communication strategy has made the biggest difference for your child?

  • No School Place for September? What SEND Parents Need to Know

    For most families, August is spent buying school uniforms, labelling PE kits and getting children ready for the new school year.

    But for thousands of SEND families, August is filled with uncertainty.

    One question keeps coming up:

    “What happens if my child still doesn’t have a school place for September?”

    Sadly, this is a reality many families face every year.


    You’re Not Alone

    Every summer, I hear from parents whose child:

    • Still doesn’t have a named school.
    • Has been refused by multiple schools.
    • Is waiting for an EHCP to be finalised.
    • Has an appeal or Tribunal coming up.
    • Has been told there simply isn’t a suitable place available.

    The emotional toll on families is enormous.

    Children become anxious.

    Parents lie awake wondering what’s going to happen.

    And September gets closer.


    If Your Child Has an EHCP

    If your child has an Education, Health and Care Plan (EHCP), it’s important to remember this:

    Your local authority has a legal duty to secure the educational provision specified in your child’s EHCP.

    If your child has no school place, that doesn’t mean this duty simply disappears.

    The local authority still needs to consider how your child’s educational needs will be met while a suitable placement is being found.


    Keep Everything in Writing

    If your child still has no placement, now is the time to communicate in writing.

    Ask your local authority:

    • What educational provision is being arranged from September?
    • What interim support will be available?
    • What steps are being taken to secure a suitable placement?
    • When do they expect this to be resolved?

    Keeping a written record is important if delays continue.


    Don’t Assume They Already Know

    Many parents assume:

    “They know my child doesn’t have a school.”

    “They’ll contact me.”

    “They’re sorting it.”

    Unfortunately, that’s not always the case.

    If you haven’t received clear information, don’t be afraid to ask.


    Your Child Is Still Entitled to an Education

    One of the biggest misconceptions is that if there isn’t a school place available, families simply have to wait.

    Children remain entitled to an education.

    What that looks like will depend on the individual circumstances, but your local authority should be considering how your child’s educational needs can be met while longer-term arrangements are being made.


    This Isn’t Your Fault

    One of the hardest parts of this process is the guilt many parents carry.

    They worry they’ve done something wrong.

    That they should have fought harder.

    That they’ve somehow failed their child.

    You haven’t.

    The lack of suitable school places is a systemic issue affecting families across the country.


    What You Can Do Today

    If your child still has no school place:

    ✅ Contact your local authority for an update.

    ✅ Ask what educational provision will be in place from September.

    ✅ Keep all communication in writing.

    ✅ Keep copies of every email and letter.

    ✅ Continue to advocate for your child calmly and consistently.


    The Bigger Picture

    No parent should spend the summer wondering whether their child will have an education in September.

    Yet for many SEND families, that’s exactly what’s happening.

    Every child deserves more than a place on a waiting list.

    Every child deserves an education that is suitable, safe and capable of meeting their individual needs.


    AskEllie Can Help

    If you’re struggling because your child still has no school place, you’re not alone.

    At AskEllie, we help families understand their rights, navigate EHCP issues and communicate more confidently with local authorities and schools.

    Sometimes, knowing the right questions to ask can make all the difference.

    If your child still has no school place for September, take one step today.

    Ask the question.

    Keep it in writing.

    And remember—you are advocating for something your child is entitled to, not asking for a favour.

  • 5 Little-Known Resources Every SEND Family Should Know About

    Raising a child with special educational needs or disabilities (SEND) can feel overwhelming. Between school meetings, appointments, paperwork and daily life, it’s easy to miss out on support that could make a real difference.

    The good news is that there are several resources available across the UK that many families simply don’t know exist.

    Here are five worth checking today.


    1. The Access Card

    The Access Card is one of the most useful disability cards available in the UK.

    Rather than repeatedly explaining your child’s needs at different venues, the card provides a recognised way of communicating the adjustments your child may require.

    Depending on your child’s needs, it can help with:

    • Free companion tickets
    • Queue adjustments
    • Accessible seating
    • Easier access to attractions and events

    It’s accepted at more than 1,000 venues across the UK, including cinemas, theme parks, arenas and visitor attractions.

    If your child receives Disability Living Allowance (DLA), Personal Independence Payment (PIP), or has another qualifying disability, it’s well worth looking into.


    2. The Max Card

    The Max Card gives eligible SEND families discounted entry to hundreds of attractions across the UK.

    Depending on your local authority, this may include:

    • Zoos
    • Theme parks
    • Soft play centres
    • Swimming pools
    • Museums
    • Leisure centres
    • Family attractions

    Many local authorities provide the card free of charge to eligible families, although eligibility criteria vary.

    If your child has an EHCP, receives DLA or accesses certain SEND services, you may qualify.

    It’s always worth checking with your local authority.


    3. Your Council’s SEND Local Offer

    Every local authority in England must publish a SEND Local Offer.

    Unfortunately, many parents have never heard of it.

    The Local Offer is designed to bring together information about services available in your area, including:

    • Holiday activities
    • Short breaks
    • Support groups
    • Local charities
    • Youth clubs
    • Leisure opportunities
    • Parent support services
    • Health services
    • Education advice

    Every area is different, so it’s worth searching online for:

    “[Your Council] SEND Local Offer”

    You might be surprised by what’s available.


    4. Free SEND Advice Organisations

    Trying to understand education law or benefits can feel incredibly daunting.

    Fortunately, several organisations provide free, independent advice.

    Some of the best-known include:

    Contact

    Contact provides practical information for families raising disabled children, including advice about benefits, education and family life.

    IPSEA

    IPSEA specialises in SEND law and can help parents understand their legal rights around Education, Health and Care Plans (EHCPs), school support and appeals.

    SENDIASS

    Every local authority has a SEND Information, Advice and Support Service (SENDIASS), offering free and impartial advice to families.

    Getting the right advice early can often prevent months of unnecessary stress.


    5. Merlin’s Magic Wand

    Many families have never heard of Merlin’s Magic Wand, but it provides unforgettable experiences for children facing serious illness or disability.

    Eligible families may be able to enjoy free visits to Merlin attractions, including:

    • LEGOLAND
    • SEA LIFE Centres
    • Madame Tussauds
    • Warwick Castle
    • Other participating Merlin attractions

    The charity exists to help create magical memories for children and families who may be facing significant challenges.

    Eligibility criteria apply, so it’s worth checking whether your child qualifies.


    Don’t Miss Out on Support

    One of the biggest frustrations we hear from SEND families is:

    “Nobody ever told us this existed.”

    Too often, parents only discover helpful resources through other families rather than professionals.

    Taking just an hour to explore what’s available could save you money, reduce stress and open up opportunities your family didn’t know existed.

    If you know another SEND parent who might benefit from these resources, please share this article with them.

    Sometimes the smallest piece of information can make the biggest difference.


    Need More Help?

    At AskEllie, we help SEND families navigate:

    • EHCPs
    • Disability Living Allowance (DLA)
    • Mandatory Reconsiderations
    • DLA Renewals
    • Change of Circumstances applications
    • SEND rights and education support

    Our goal is simple: to make sure families understand their rights and don’t miss out on the support they’re entitled to.

  • The Truth About ADHD and Autism Diagnoses: What the New Government Report Actually Says

    “Why does it feel like every other child has ADHD or autism these days?”

    It’s a question many parents, teachers and even politicians have asked.

    Some people believe we’re seeing an explosion in ADHD and autism.

    But a new independent government report suggests something very different.

    The report argues that the issue isn’t that dramatically more children have ADHD or autism—it’s that our education and healthcare systems have made a diagnosis the gateway to support.

    That distinction matters.


    Have ADHD and Autism Really Increased?

    One of the report’s most important findings is that when researchers looked at the proportion of children who meet the criteria for ADHD or autism, the figures have remained relatively stable over time.

    So why do diagnosis numbers appear to be rising?

    Because more families are coming forward for assessments than ever before.

    That doesn’t necessarily mean more children have ADHD or autism.

    It means more children are finally being recognised.


    Girls Have Been Missed for Years

    One of the strongest messages in the report is that girls have historically been overlooked.

    For decades, autism and ADHD were largely understood through research carried out on boys.

    Many girls:

    • Masked their difficulties.
    • Copied other children socially.
    • Were labelled as anxious.
    • Were described as shy or sensitive.
    • Worked incredibly hard to hide how much they were struggling.

    As a result, thousands reached adolescence—or even adulthood—without anyone recognising they were autistic or had ADHD.

    Many are only now receiving the diagnosis they should have had years ago.

    This isn’t evidence of “over-diagnosis.”

    It’s evidence that we’re becoming better at recognising girls whose needs were previously missed.


    Why Are Waiting Lists So Long?

    The report highlights an astonishing increase in ADHD assessment waiting lists.

    In 2019, around 21,000 children were waiting for an ADHD assessment.

    By the end of last year, that figure had risen to around 270,000.

    Those numbers understandably raise questions.

    But the report suggests the waiting lists themselves are not proof that ADHD is suddenly more common.

    Instead, they reflect growing demand for assessments within a system where diagnosis has become the key to accessing support.


    Parents Aren’t Chasing Labels

    One of the most important messages in the report is this:

    Parents are not simply seeking diagnoses for the sake of a label.

    They’re seeking help.

    For many families, a diagnosis can unlock:

    • School support.
    • Reasonable adjustments.
    • EHCP assessments.
    • Exam access arrangements.
    • Referrals to specialist services.
    • Better understanding from professionals.

    If support is largely dependent on diagnosis, it’s entirely understandable why parents pursue one.

    As the report suggests, families are responding rationally to the way the system currently works.


    The Real Crisis Isn’t Diagnosis

    Perhaps the most worrying part of the report isn’t about ADHD or autism at all.

    It’s about children’s mental health.

    The report highlights increasing levels of:

    • Anxiety.
    • Loneliness.
    • Sleep difficulties.
    • Problems concentrating.
    • Reduced confidence.

    These trends began before the pandemic, although COVID-19 appears to have made existing problems worse.

    Meanwhile, many children spend months—or even years—waiting for an assessment while continuing to struggle at school.


    Teachers Often Spot the Need First

    Long before an assessment takes place, teachers frequently notice that something isn’t right.

    A child may struggle to:

    • Sit still.
    • Concentrate.
    • Regulate emotions.
    • Cope with sensory overload.
    • Manage friendships.
    • Access learning.

    Yet many schools feel limited in what support they can provide until a formal diagnosis is made.

    By the time assessments finally happen, some children have already fallen significantly behind.


    Support Should Follow Need—Not Diagnosis

    Perhaps the most important conclusion from the report is that support should be based on a child’s needs, not solely on whether they have a diagnosis.

    If a child is clearly struggling in school today, they shouldn’t have to wait years for a label before meaningful help begins.

    Early intervention benefits everyone.

    It reduces distress for children, eases pressure on families, and gives schools a better chance of supporting pupils before difficulties escalate.


    What This Means for SEND Families

    Many parents reading this will recognise exactly what the report describes.

    You’ve probably never wanted a label.

    You’ve wanted your child to receive the support they need.

    For too many families, diagnosis has become the only door into that support.

    The report suggests it’s time to rethink that approach.

    Children shouldn’t have to become more anxious, fall further behind or wait years for help simply because they’re still in a diagnostic queue.

    Every child deserves support when they need it—not just when the paperwork catches up.

    Full Report click here


    Final Thoughts

    The conversation shouldn’t be about whether “too many children have ADHD or autism.”

    The real question is:

    Why do so many families feel they need a diagnosis before anyone will listen?

    If we can build a system that responds to children’s needs earlier—whether or not a diagnosis has been confirmed—we’ll spend less time debating labels and more time helping children thrive.

    That’s a goal every parent, teacher and policymaker should be able to support.

  • Why Do Some Children Always End Up in Their Parents’ Bed? What Psychology Says

    If your child happily falls asleep in their own bed but somehow appears beside you at 2am, 3am or 4am, you’re certainly not alone.

    For many families—particularly those raising autistic or ADHD children—this becomes part of everyday life.

    Parents often say:

    “She goes to sleep perfectly in her own bed… but every night she quietly climbs into ours.”

    “He doesn’t even wake us. We just realise he’s there.”

    “She touches my face just to check I’m there, then goes straight back to sleep.”

    So why does it happen?

    The answer may have more to do with your child’s nervous system than their bedtime routine.


    It’s Often About Feeling Safe

    As children move through the lighter stages of sleep during the night, it’s normal for them to wake briefly.

    Most adults do this too—we simply don’t remember it.

    When some children wake, they quickly settle themselves back to sleep.

    Others instinctively seek the person who makes them feel safest.

    That person is usually a parent.

    According to attachment theory, developed by psychologist John Bowlby and expanded by Mary Ainsworth, children naturally use their primary caregiver as a “secure base.” When they feel uncertain or unsettled, moving closer to that trusted person can help them feel safe enough to relax again.


    Why Is It So Common in Autistic and ADHD Children?

    Many autistic and ADHD children experience differences that can make overnight waking more challenging.

    These can include:

    • Increased anxiety
    • Sensory sensitivities
    • Difficulty regulating emotions
    • Differences in sleep patterns
    • A nervous system that stays on high alert

    When they wake during the night, their body may struggle to return to a calm state on its own.

    Finding Mum or Dad isn’t necessarily about wanting attention.

    It’s often about helping their nervous system feel safe again.


    Why Do They Go Straight Back to Sleep?

    One of the most common things parents say is:

    “They don’t even talk. They just get into bed and fall asleep immediately.”

    That actually makes sense.

    Many children aren’t looking for a conversation.

    They’re looking for reassurance.

    Sometimes that’s:

    • Hearing your breathing
    • Feeling your warmth
    • Holding your hand
    • Touching your arm or cheek
    • Simply knowing you’re nearby

    Once their brain receives that signal of safety, they can often relax enough to drift straight back to sleep.


    Does This Mean You’ve Created a “Bad Habit”?

    Parents often worry that allowing a child into their bed will make the behaviour worse.

    The reality is more complicated.

    For some children, consistent routines and gradually encouraging independent sleep can help.

    For others—particularly children with autism, ADHD or high levels of anxiety—the need for reassurance may be linked to how their nervous system responds to stress rather than simply a behavioural habit.

    There isn’t a one-size-fits-all solution.


    What Can Help?

    Every child is different, but some families find these approaches helpful:

    Keep bedtime predictable

    A calm, consistent routine helps many children feel more secure before sleep.

    Create a comforting sleep environment

    Weighted blankets (where appropriate), favourite soft toys, night lights or white noise can help some children feel more settled.

    Reassure without adding pressure

    If your child wakes overnight, responding calmly and consistently can help them feel safe without increasing anxiety.

    Understand the “why”

    Instead of asking:

    “Why won’t they stay in bed?”

    Try asking:

    “What is my child needing in this moment?”

    That small change in perspective can completely transform how you respond.


    You’re Not Alone

    If your child regularly appears beside your bed during the early hours, it doesn’t automatically mean you’re doing anything wrong.

    For many families—especially those raising neurodivergent children—it reflects a child seeking safety, comfort and regulation rather than attention or defiance.

    As children grow and develop confidence in their own ability to self-soothe, many naturally begin spending more of the night in their own bed.

    Until then, understanding why it happens can often reduce the guilt and frustration many parents carry.

    Sometimes, what looks like a “sleep problem” is actually a child quietly saying:

    “I just need to know you’re still there.”


    For more practical advice on autism, ADHD, PDA and parenting, visit AskEllie.co.uk, where thousands of families access free guidance and support every month.