Category: Uncategorized

  • The Truth About ADHD and Autism Diagnoses: What the New Government Report Actually Says

    “Why does it feel like every other child has ADHD or autism these days?”

    It’s a question many parents, teachers and even politicians have asked.

    Some people believe we’re seeing an explosion in ADHD and autism.

    But a new independent government report suggests something very different.

    The report argues that the issue isn’t that dramatically more children have ADHD or autism—it’s that our education and healthcare systems have made a diagnosis the gateway to support.

    That distinction matters.


    Have ADHD and Autism Really Increased?

    One of the report’s most important findings is that when researchers looked at the proportion of children who meet the criteria for ADHD or autism, the figures have remained relatively stable over time.

    So why do diagnosis numbers appear to be rising?

    Because more families are coming forward for assessments than ever before.

    That doesn’t necessarily mean more children have ADHD or autism.

    It means more children are finally being recognised.


    Girls Have Been Missed for Years

    One of the strongest messages in the report is that girls have historically been overlooked.

    For decades, autism and ADHD were largely understood through research carried out on boys.

    Many girls:

    • Masked their difficulties.
    • Copied other children socially.
    • Were labelled as anxious.
    • Were described as shy or sensitive.
    • Worked incredibly hard to hide how much they were struggling.

    As a result, thousands reached adolescence—or even adulthood—without anyone recognising they were autistic or had ADHD.

    Many are only now receiving the diagnosis they should have had years ago.

    This isn’t evidence of “over-diagnosis.”

    It’s evidence that we’re becoming better at recognising girls whose needs were previously missed.


    Why Are Waiting Lists So Long?

    The report highlights an astonishing increase in ADHD assessment waiting lists.

    In 2019, around 21,000 children were waiting for an ADHD assessment.

    By the end of last year, that figure had risen to around 270,000.

    Those numbers understandably raise questions.

    But the report suggests the waiting lists themselves are not proof that ADHD is suddenly more common.

    Instead, they reflect growing demand for assessments within a system where diagnosis has become the key to accessing support.


    Parents Aren’t Chasing Labels

    One of the most important messages in the report is this:

    Parents are not simply seeking diagnoses for the sake of a label.

    They’re seeking help.

    For many families, a diagnosis can unlock:

    • School support.
    • Reasonable adjustments.
    • EHCP assessments.
    • Exam access arrangements.
    • Referrals to specialist services.
    • Better understanding from professionals.

    If support is largely dependent on diagnosis, it’s entirely understandable why parents pursue one.

    As the report suggests, families are responding rationally to the way the system currently works.


    The Real Crisis Isn’t Diagnosis

    Perhaps the most worrying part of the report isn’t about ADHD or autism at all.

    It’s about children’s mental health.

    The report highlights increasing levels of:

    • Anxiety.
    • Loneliness.
    • Sleep difficulties.
    • Problems concentrating.
    • Reduced confidence.

    These trends began before the pandemic, although COVID-19 appears to have made existing problems worse.

    Meanwhile, many children spend months—or even years—waiting for an assessment while continuing to struggle at school.


    Teachers Often Spot the Need First

    Long before an assessment takes place, teachers frequently notice that something isn’t right.

    A child may struggle to:

    • Sit still.
    • Concentrate.
    • Regulate emotions.
    • Cope with sensory overload.
    • Manage friendships.
    • Access learning.

    Yet many schools feel limited in what support they can provide until a formal diagnosis is made.

    By the time assessments finally happen, some children have already fallen significantly behind.


    Support Should Follow Need—Not Diagnosis

    Perhaps the most important conclusion from the report is that support should be based on a child’s needs, not solely on whether they have a diagnosis.

    If a child is clearly struggling in school today, they shouldn’t have to wait years for a label before meaningful help begins.

    Early intervention benefits everyone.

    It reduces distress for children, eases pressure on families, and gives schools a better chance of supporting pupils before difficulties escalate.


    What This Means for SEND Families

    Many parents reading this will recognise exactly what the report describes.

    You’ve probably never wanted a label.

    You’ve wanted your child to receive the support they need.

    For too many families, diagnosis has become the only door into that support.

    The report suggests it’s time to rethink that approach.

    Children shouldn’t have to become more anxious, fall further behind or wait years for help simply because they’re still in a diagnostic queue.

    Every child deserves support when they need it—not just when the paperwork catches up.

    Full Report click here


    Final Thoughts

    The conversation shouldn’t be about whether “too many children have ADHD or autism.”

    The real question is:

    Why do so many families feel they need a diagnosis before anyone will listen?

    If we can build a system that responds to children’s needs earlier—whether or not a diagnosis has been confirmed—we’ll spend less time debating labels and more time helping children thrive.

    That’s a goal every parent, teacher and policymaker should be able to support.

  • Why Do Some Children Always End Up in Their Parents’ Bed? What Psychology Says

    If your child happily falls asleep in their own bed but somehow appears beside you at 2am, 3am or 4am, you’re certainly not alone.

    For many families—particularly those raising autistic or ADHD children—this becomes part of everyday life.

    Parents often say:

    “She goes to sleep perfectly in her own bed… but every night she quietly climbs into ours.”

    “He doesn’t even wake us. We just realise he’s there.”

    “She touches my face just to check I’m there, then goes straight back to sleep.”

    So why does it happen?

    The answer may have more to do with your child’s nervous system than their bedtime routine.


    It’s Often About Feeling Safe

    As children move through the lighter stages of sleep during the night, it’s normal for them to wake briefly.

    Most adults do this too—we simply don’t remember it.

    When some children wake, they quickly settle themselves back to sleep.

    Others instinctively seek the person who makes them feel safest.

    That person is usually a parent.

    According to attachment theory, developed by psychologist John Bowlby and expanded by Mary Ainsworth, children naturally use their primary caregiver as a “secure base.” When they feel uncertain or unsettled, moving closer to that trusted person can help them feel safe enough to relax again.


    Why Is It So Common in Autistic and ADHD Children?

    Many autistic and ADHD children experience differences that can make overnight waking more challenging.

    These can include:

    • Increased anxiety
    • Sensory sensitivities
    • Difficulty regulating emotions
    • Differences in sleep patterns
    • A nervous system that stays on high alert

    When they wake during the night, their body may struggle to return to a calm state on its own.

    Finding Mum or Dad isn’t necessarily about wanting attention.

    It’s often about helping their nervous system feel safe again.


    Why Do They Go Straight Back to Sleep?

    One of the most common things parents say is:

    “They don’t even talk. They just get into bed and fall asleep immediately.”

    That actually makes sense.

    Many children aren’t looking for a conversation.

    They’re looking for reassurance.

    Sometimes that’s:

    • Hearing your breathing
    • Feeling your warmth
    • Holding your hand
    • Touching your arm or cheek
    • Simply knowing you’re nearby

    Once their brain receives that signal of safety, they can often relax enough to drift straight back to sleep.


    Does This Mean You’ve Created a “Bad Habit”?

    Parents often worry that allowing a child into their bed will make the behaviour worse.

    The reality is more complicated.

    For some children, consistent routines and gradually encouraging independent sleep can help.

    For others—particularly children with autism, ADHD or high levels of anxiety—the need for reassurance may be linked to how their nervous system responds to stress rather than simply a behavioural habit.

    There isn’t a one-size-fits-all solution.


    What Can Help?

    Every child is different, but some families find these approaches helpful:

    Keep bedtime predictable

    A calm, consistent routine helps many children feel more secure before sleep.

    Create a comforting sleep environment

    Weighted blankets (where appropriate), favourite soft toys, night lights or white noise can help some children feel more settled.

    Reassure without adding pressure

    If your child wakes overnight, responding calmly and consistently can help them feel safe without increasing anxiety.

    Understand the “why”

    Instead of asking:

    “Why won’t they stay in bed?”

    Try asking:

    “What is my child needing in this moment?”

    That small change in perspective can completely transform how you respond.


    You’re Not Alone

    If your child regularly appears beside your bed during the early hours, it doesn’t automatically mean you’re doing anything wrong.

    For many families—especially those raising neurodivergent children—it reflects a child seeking safety, comfort and regulation rather than attention or defiance.

    As children grow and develop confidence in their own ability to self-soothe, many naturally begin spending more of the night in their own bed.

    Until then, understanding why it happens can often reduce the guilt and frustration many parents carry.

    Sometimes, what looks like a “sleep problem” is actually a child quietly saying:

    “I just need to know you’re still there.”


    For more practical advice on autism, ADHD, PDA and parenting, visit AskEllie.co.uk, where thousands of families access free guidance and support every month.

  • ADHD in Women: Could It Be One of the Most Under-Recognised Medical Conditions?

    For years, countless women have been told they’re simply disorganised, emotional, forgetful or “not trying hard enough.”

    Many have spent decades blaming themselves without ever realising there could be a medical explanation.

    Today, more doctors and researchers are recognising that ADHD in women has often been overlooked—partly because it can look very different from the stereotypes many people associate with ADHD.

    ADHD Doesn’t Always Look Like Hyperactivity

    When people think about ADHD, they often picture a young boy who can’t sit still.

    But many women experience ADHD very differently.

    Instead of obvious hyperactivity, they may struggle with:

    • Constant overwhelm
    • Forgetfulness
    • Chronic disorganisation
    • Emotional sensitivity
    • Executive dysfunction
    • Mental exhaustion
    • Difficulty starting or finishing tasks
    • Feeling like they’re constantly “behind”

    Many become experts at masking these difficulties, meaning friends, family and even healthcare professionals may never realise they’re struggling.


    The Hormone Connection

    One reason ADHD in women has received more attention recently is because of growing research into the role hormones may play.

    Doctors and researchers believe that oestrogen appears to influence dopamine, one of the key brain chemicals involved in ADHD.

    Dopamine helps regulate:

    • Attention
    • Motivation
    • Memory
    • Executive functioning
    • Reward
    • Emotional regulation

    Because hormone levels naturally change throughout a woman’s life, ADHD symptoms may also fluctuate.


    Why Some Women Feel Worse Around Their Period

    Many women with ADHD report that their symptoms become noticeably more difficult just before and during their period.

    They often describe experiencing:

    • More brain fog
    • Increased forgetfulness
    • Greater emotional sensitivity
    • Feeling overwhelmed more easily
    • Increased executive dysfunction
    • Lower motivation
    • Difficulty concentrating

    Researchers think this may be linked to falling oestrogen levels during this stage of the menstrual cycle.

    Although everyone’s experience is different, many women say these changes are significant enough to affect work, relationships and everyday life.


    ADHD and Menopause

    Menopause is another stage where many women first realise something isn’t quite right.

    As oestrogen levels decline over time, some women report that coping strategies they’ve relied on for years suddenly stop working.

    Tasks that once felt manageable become overwhelming.

    Masking becomes harder.

    Everyday responsibilities can begin to feel impossible.

    For some women, this is the point at which they finally seek an ADHD assessment.


    Executive Dysfunction Is More Than Forgetfulness

    One of the biggest misconceptions about ADHD is that it’s simply a problem with paying attention.

    In reality, many people find the hardest part is executive dysfunction.

    This can affect your ability to:

    • Plan tasks
    • Organise your day
    • Prioritise
    • Start activities
    • Finish projects
    • Manage time
    • Remember appointments
    • Switch between tasks

    You know exactly what needs to be done.

    Your brain simply won’t cooperate.


    The Emotional Toll

    Living with undiagnosed ADHD can have a huge emotional impact.

    Many women spend years believing they’re:

    • Lazy
    • Careless
    • Disorganised
    • Bad at adult life
    • Letting everyone down

    Over time, constantly fighting your own brain can become exhausting.

    Many women also describe experiencing intense emotional reactions to criticism or perceived rejection, sometimes referred to as Rejection Sensitive Dysphoria (RSD). While RSD is widely discussed within the ADHD community, it is not currently recognised as an official diagnostic feature of ADHD.


    Could You Have ADHD?

    Everyone occasionally forgets things or feels overwhelmed.

    But if these difficulties have been present since childhood and consistently affect your work, education, relationships or everyday life, it may be worth exploring further.

    Common signs include:

    • Frequently losing important items
    • Time blindness
    • Chronic lateness
    • Difficulty starting tasks
    • Constant overwhelm
    • Forgetting appointments
    • Emotional dysregulation
    • Feeling mentally exhausted from masking
    • Struggling to keep organised despite trying hard

    What Should You Do Next?

    If this article resonates with you, the first step is to speak with your GP.

    They can discuss your symptoms, consider other possible causes and, if appropriate, refer you for an ADHD assessment.

    Getting assessed doesn’t mean you’ll receive a diagnosis—but it can be the beginning of understanding yourself better and accessing the right support.


    Final Thoughts

    For many women, discovering they have ADHD isn’t about finding an excuse.

    It’s about finally finding an explanation.

    Understanding how ADHD can present differently in women—and how hormonal changes may influence symptoms—has helped many people realise they were never “lazy” or “broken.”

    They were trying to navigate life with a neurodevelopmental condition that had simply gone unrecognised.

    As awareness continues to grow, the hope is that fewer women will spend decades wondering why life has always felt harder than it seemed to for everyone else.


    Further reading and support:

    • NHS – ADHD in adults
    • ADHD UK
    • ADDitude Magazine
    • National Institute of Mental Health (NIMH)

    If you think you may have ADHD, remember that support is available, and you don’t have to work it out on your own.

  • Free and Low-Cost Holidays for Families This Summer: 5 Places to Check

    For many families, the summer holidays are something to look forward to.

    But if you’re raising a child with SEND, or you’re already struggling with the cost of living, the thought of paying for days out or a family holiday can feel impossible.

    The good news is that there are grants, schemes and discounted holidays available that many parents simply don’t know about.

    Here are five places worth checking before you spend your own money.


    1. Holiday Grants Through Charities

    There are charities across the UK that help families who couldn’t otherwise afford a break away.

    Depending on your circumstances, you may be able to receive help towards the cost of a holiday, short break or family trip.

    One well-known organisation is the Family Holiday Charity, but there are also many smaller charities and local organisations that offer similar support.


    2. Holiday Activities and Food (HAF) Programme

    If your child is eligible for benefits-related free school meals, your local authority may offer free holiday clubs through the Holiday Activities and Food (HAF) Programme.

    These often include:

    • Free meals
    • Sports
    • Arts and crafts
    • Outdoor activities
    • SEND-friendly sessions in some areas

    Availability varies between councils, so it’s worth searching:

    “HAF programme + your council name.”


    3. Local Council Support

    Many councils provide free or heavily subsidised activities during the summer holidays.

    These can include:

    • Swimming sessions
    • Museums
    • Family fun days
    • Sports activities
    • Nature walks
    • SEND-specific events

    Unfortunately, these schemes aren’t always well advertised, so it’s worth checking your council’s website or Facebook page.


    4. The Sun Holiday Deals

    Every year, The Sun runs one of the UK’s most popular low-cost holiday promotions.

    By collecting promotional codes, families can often book UK holiday park breaks for a fraction of the usual price.

    While they’re not free, they can be one of the cheapest ways to enjoy a family break during the school holidays.


    5. Search for Local Holiday Grants

    One of the biggest mistakes parents make is assuming there isn’t any help available locally.

    Many areas have:

    • Community foundations
    • Local charities
    • Family support organisations
    • Rotary Clubs
    • Lions Clubs
    • Church groups
    • Children’s charities

    that quietly provide grants or funding for holidays, day trips and family activities.

    Try searching:

    • Holiday grants + your town
    • Family holiday support + your county
    • Children’s holiday fund + your area
    • Family support grants + your local authority

    You might be surprised by what’s available.


    Don’t Forget Your Child’s SEND Support

    If your child has an EHCP, receives support from social care, or has a disability, it’s also worth asking:

    • Your school’s SENDCo
    • Your family support worker
    • Your local SENDIASS service
    • Your local parent carer forum

    They often know about local schemes that aren’t widely advertised.


    A Final Thought

    Summer shouldn’t be a time when families feel guilty because they can’t afford expensive days out.

    There is support available—but much of it relies on parents knowing where to look.

    If you’ve discovered a brilliant holiday grant, charity or local scheme that helped your family, share it with other parents. One recommendation could make a real difference to someone who thought a holiday simply wasn’t possible this year.


    Need More SEND Support?

    If you’re looking for practical guidance on EHCPs, DLA, PIP, school issues, autism, ADHD or navigating the SEND system, visit AskEllie for clear, easy-to-understand advice designed specifically for families.

    You’re not alone—and together we can help more parents find the support they’re entitled to.

  • 5 Signs Your Daughter Isn’t “Just Hormonal”… It Could Actually Be Autism

    As parents, we’re often told:

    “It’s just hormones.”

    “She’s just being a typical teenage girl.”

    “She’ll grow out of it.”

    But what if that’s not the whole story?

    Over the past few years, I’ve spoken to hundreds of families whose daughters weren’t recognised as autistic until their teenage years. Many parents told me they spent years believing their daughter was “just anxious” or “just hormonal,” only to later discover there was much more going on.

    This article isn’t about diagnosing autism. It’s about recognising signs that may be worth exploring with a healthcare professional.

    1. Everything Changed When She Started Secondary School

    This is probably the most common story I hear.

    Parents often say:

    “She coped in primary school…”

    “Then she started secondary school and everything fell apart.”

    Secondary school brings:

    • Multiple teachers.
    • Constant transitions.
    • Bigger classrooms.
    • Louder environments.
    • Increased social expectations.
    • More independence.

    For many autistic girls, it’s not that autism suddenly appears.

    It’s that the demands become too great to keep masking.

    2. She Holds It Together at School… Then Melts Down at Home

    One of the biggest misconceptions is:

    “School says she’s absolutely fine.”

    Many autistic girls become experts at masking.

    They spend the entire school day:

    • Watching other children.
    • Copying behaviour.
    • Hiding sensory discomfort.
    • Forcing eye contact.
    • Trying to appear “normal.”

    By the time they get home, they’re exhausted.

    Home often becomes the one place where they finally feel safe enough to stop pretending.

    3. Friendships Suddenly Become Incredibly Difficult

    As children get older, friendships become much more complex.

    Many autistic girls begin to struggle with:

    • Group dynamics.
    • Hidden social rules.
    • Bullying.
    • Feeling left out.
    • Constantly worrying they’ve said the wrong thing.

    Parents often notice their daughter withdrawing socially or becoming increasingly anxious about school.

    4. Everyone Thinks She’s “Just Moody”

    Teenagers naturally experience emotional changes.

    But there’s a difference between typical teenage behaviour and a young person whose nervous system is overwhelmed every single day.

    Autistic girls may experience:

    • Emotional exhaustion.
    • Sensory overload.
    • Burnout.
    • Shutdowns.
    • Meltdowns.

    These are often misunderstood as attitude or hormones.

    5. Anxiety Seems to Take Over Everyday Life

    Many autistic girls are initially diagnosed with anxiety before autism is recognised.

    They may experience:

    • School refusal or EBSA.
    • Panic attacks.
    • Difficulty sleeping.
    • Constant worrying.
    • Physical symptoms such as stomach aches or headaches before school.

    While anxiety can exist on its own, for some girls it’s actually a sign that they’ve been masking autism for years.

    Why Girls Are Often Diagnosed Later

    Historically, autism research focused largely on boys.

    We now know many autistic girls present differently.

    They may:

    • Copy other children.
    • Be quieter.
    • Mask their difficulties.
    • Work incredibly hard to fit in.
    • Hide how overwhelmed they really feel.

    Because of this, many aren’t recognised until secondary school, when the social and sensory demands become too much.

    This Doesn’t Automatically Mean Autism

    Every child is different.

    Experiencing one or even several of these signs doesn’t automatically mean your daughter is autistic.

    However, if you recognise many of these experiences, it’s worth discussing your concerns with your GP, school or another healthcare professional who can advise on the next steps.

    Final Thoughts

    Perhaps the biggest message I want parents to take away is this:

    Your daughter isn’t “too sensitive.”

    She isn’t “too dramatic.”

    She isn’t “just hormonal.”

    She may simply be working incredibly hard every single day to navigate a world that feels overwhelming.

    Understanding that can change everything.


    Need more SEND support?

    At AskEllie, we help families understand autism, ADHD, EHCPs, DLA, PIP and the SEND system in plain English.

    Visit AskEllie.co.uk for practical guidance, support and resources for families navigating life with neurodivergent children.

  • 5 Benefits You Might Be Missing If You Receive DLA or PIP

    When a child or adult is awarded Disability Living Allowance (DLA) or Personal Independence Payment (PIP), many families assume that’s the end of the process.

    It isn’t.

    In fact, receiving DLA or PIP can open the door to a range of other benefits and support that many people simply aren’t told about.

    Here are five of the most important.


    1. Carer’s Allowance or the Carer Element of Universal Credit

    If you provide 35 hours or more of care each week, you may be entitled to additional financial support.

    Depending on your circumstances, this could be through:

    • Carer’s Allowance
    • The Carer Element of Universal Credit

    Many parents only discover this months—or even years—after their child’s DLA has been awarded.

    Some families have gone on to receive significant back payments, although this depends on individual circumstances and eligibility.

    If you’re caring for a disabled child or adult, it’s always worth checking what you’re entitled to.


    2. Blue Badge and Free Vehicle Tax

    If your child receives the Higher Rate Mobility Component of DLA, you may also qualify for:

    • Blue Badge
    • 100% free vehicle tax for one vehicle used for your child’s benefit.

    A Blue Badge can make everyday life much easier if your child struggles with mobility, safety, sensory overwhelm or walking long distances.

    Many families know about one of these benefits but not both.


    3. Free School Meals

    From the 2026/27 school year in England, all children whose parents receive Universal Credit are expected to become eligible for free school meals under the government’s expanded eligibility criteria.

    If your family receives Universal Credit, it’s worth checking with your local authority or your child’s school to make sure you’re receiving everything you’re entitled to.

    Free school meals can also unlock additional funding for schools through the Pupil Premium, helping schools provide extra support.


    4. Disabled Child Element of Universal Credit

    If your child receives DLA and you claim Universal Credit, you may also qualify for the Disabled Child Element.

    This can significantly increase the amount of Universal Credit your family receives each month.

    One important point:

    Many parents don’t realise they need to tell Universal Credit when their child is awarded DLA.

    If you don’t report the award, you may miss out on additional support.


    5. Disabled Facilities Grant (DFG)

    If your child’s disability means adaptations are needed at home, you may be able to apply for a Disabled Facilities Grant.

    Depending on your circumstances, this funding can help pay for things such as:

    • Accessible bathrooms.
    • Ramps.
    • Wider doorways.
    • Safe spaces.
    • Specialist equipment.
    • Other adaptations that help your child live safely at home.

    Many families have never heard of the Disabled Facilities Grant until someone tells them.


    Don’t Assume You’ll Automatically Receive Everything

    One of the biggest myths is that once DLA or PIP is awarded, every other benefit will automatically follow.

    Unfortunately, that’s often not the case.

    Many benefits require you to:

    • Tell Universal Credit about your award.
    • Make separate applications.
    • Request additional assessments.
    • Contact your local authority.

    That’s why understanding the wider support available is so important.


    Final Thoughts

    Every week I hear from parents who say:

    “I wish I’d known this sooner.”

    The benefits system can feel incredibly complicated, especially when you’re already caring for a disabled child or managing your own health.

    The good news is that help is available—but sometimes you have to know where to look.

    If you think you might be entitled to one of the benefits mentioned above, don’t assume the answer is “no.”

    Ask.

    Check.

    And get advice if you’re unsure.


    Need Help?

    At AskEllie, we help families understand disability benefits, EHCPs, SEND law and the wider support they may be entitled to.

    Visit AskEllie.co.uk for practical guidance and personalised support.

  • 5 SEND Rights Every Parent Should Know (But Many Are Never Told)

    One of the most common messages I receive from parents is:

    “I wish someone had told me this sooner.”

    The SEND system can feel overwhelming. Between schools, local authorities, health services and legal processes, many parents spend months—or even years—trying to work out what their child is actually entitled to.

    The good news is that there are important legal rights designed to protect children with SEND and their families.

    Here are five of the most important.


    1. You Can Request an EHCP Assessment Yourself

    Many parents believe they have to wait for the school to apply for an Education, Health and Care (EHC) needs assessment.

    You don’t.

    Under Section 36 of the Children and Families Act 2014, parents can write directly to their local authority requesting an EHC needs assessment.

    You do not need the school’s permission.

    If you believe your child may need an EHCP, you can make the request yourself.


    2. Your Child Still Has a Right to an Education If They Can’t Attend School

    Many families are told to simply wait while their child is too unwell, anxious or unable to attend school.

    However, under Section 19 of the Education Act 1996, local authorities have a duty to arrange suitable education for children who cannot attend school because of illness, exclusion or “otherwise.”

    For many children with EBSA (Emotionally Based School Avoidance), severe anxiety or unmet SEND needs, this can be an important legal protection.


    3. SEND Can Be Relevant in School Attendance Cases

    Many parents fear fines or prosecution when their child struggles to attend school.

    Attendance law is complex, and every case depends on its own facts.

    However, where non-attendance is linked to a child’s disability or unmet special educational needs, this may be highly relevant when decisions are made.

    If you’re facing attendance action, it’s important to seek advice rather than assuming you have no options.


    4. Schools Shouldn’t Wait for a Diagnosis Before Providing Support

    This surprises many parents.

    The SEND Code of Practice makes it clear that schools should identify and respond to a child’s needs—they should not delay support simply because a child is waiting for an autism, ADHD or other diagnosis.

    Support should be based on need, not labels.


    5. Your Child May Be Entitled to Free School Transport

    School transport isn’t only about distance.

    If your child’s SEND means they cannot reasonably walk to school or travel safely because of their needs, they may qualify for free home-to-school transport.

    This is often overlooked by families who assume it only applies to children attending specialist schools.


    Why Knowing Your Rights Matters

    Many parents spend years fighting simply because they weren’t told what the law already says.

    Understanding your rights helps you:

    • Ask the right questions.
    • Challenge incorrect information.
    • Make informed decisions.
    • Advocate confidently for your child.

    Knowledge won’t solve every problem, but it can stop families feeling powerless.


    You Are Not Alone

    If you’re feeling overwhelmed by the SEND system, please remember that thousands of families are navigating the same challenges.

    The law exists to protect children with SEND—but parents are rarely handed a guide explaining how it works.

    That’s one of the reasons AskEllie exists.

    We believe parents should understand their rights in plain English, without needing a law degree.


    Need More Help?

    If you’re looking for practical guidance on EHCPs, SEND law, DLA, PIP or navigating local authority decisions, visit AskEllie.co.uk.

    Together, we can make sure more families understand the rights they already have.

  • ITV SEND Whistleblower Allegations: Why So Many Parents Say, “This Happened to Us”

    An ITV News investigation has sparked an important national conversation after a whistleblower working within a council’s SEND service made a series of serious allegations about how some children are denied access to support.

    These allegations are exactly that—allegations. They should be thoroughly and independently investigated.

    However, what caught my attention wasn’t just what was said during the report.

    It was the reaction from SEND families across the UK.

    “This sounds exactly like our experience.”

    Within hours of the report being aired, parents began sharing their own stories.

    Stories of:

    • Waiting months or even years for support.
    • Emails that went unanswered.
    • Feeling unable to speak to their child’s caseworker.
    • EHCPs delayed well beyond legal timescales.
    • Being left to fight through complaints, mediation and Tribunal simply to secure support their child needed.

    Over the last two years through AskEllie, I have spoken to thousands of SEND families.

    Every family’s circumstances are different.

    Every local authority is different.

    Every professional is different.

    But one thing I cannot ignore is how often parents describe remarkably similar experiences.

    This Is Bigger Than One Council

    It is important not to assume that one person’s allegations represent every council or every SEND team.

    They don’t.

    There are many dedicated SEND caseworkers, teachers, educational psychologists and local authority staff who work incredibly hard for children every day, often under enormous pressure.

    Many professionals care deeply and are doing their very best with limited resources.

    This conversation is not about questioning their commitment.

    It is about asking why so many parents feel they are fighting a system instead of working with one.

    The Numbers Raise Their Own Questions

    Whatever the outcome of any investigation, there are already facts that cannot be ignored.

    • More than one in five pupils in England now require additional SEND support.
    • Many Education, Health and Care Plan (EHCP) applications exceed the legal 20-week deadline.
    • Around 99% of parents who reach Tribunal succeed, either because they win or because the local authority changes its position before the hearing.

    Those statistics alone suggest that many families experience significant difficulties accessing support.

    Parents Aren’t Asking For Special Treatment

    The overwhelming majority of parents I speak to are not looking for conflict.

    They don’t want to spend years appealing decisions.

    They don’t want to attend Tribunal.

    They don’t want complaints, legal letters or endless meetings.

    They simply want their children to receive the education and support they are entitled to under the law.

    Trust Matters

    One of the saddest things I hear is this:

    “I’ve lost trust in the system.”

    When parents stop believing that services are there to help them, relationships break down.

    That helps nobody.

    Not professionals.

    Not parents.

    And certainly not children.

    Rebuilding that trust has to start with openness, transparency and a willingness to listen.

    Every Story Deserves To Be Heard

    The ITV report has opened an important conversation.

    Whether the allegations are ultimately substantiated or not, the response from families shows that many people feel their experiences have not been fully heard.

    That alone should matter.

    Every child deserves fair access to support.

    Every family deserves to be treated with dignity and respect.

    And every concern deserves to be investigated properly.

    We Want To Hear From You

    Have you experienced delays in securing SEND support?

    Have you struggled to communicate with services?

    Have you felt your child’s needs were misunderstood or overlooked?

    Share your experience.

    Not because every council is the same.

    But because every family’s voice matters, and understanding those experiences is an important step towards improving the system for everyone.


    Need support with an EHCP, SEND appeals or understanding your rights?

    Visit AskEllie.co.uk for practical guidance, resources and personalised support designed to help families navigate the SEND system with confidence.

  • Many Parents Don’t Realise They Already Have These Rights Under the Children Act

    When you’re caring for a disabled child, it’s easy to feel like you’re expected to cope alone.

    Many families reach crisis point before anyone tells them that support may already exist.

    One of the biggest misconceptions I hear is:

    “I didn’t know I could ask for that.”

    The truth is, many parents have rights under the Children Act 1989, but they’re not always told about them.

    Here’s what you need to know.


    What is the Children Act 1989?

    The Children Act 1989 is one of the main laws governing support for children in England.

    Under Section 17, local authorities have a duty to safeguard and promote the welfare of Children in Need.

    Many disabled children are considered “Children in Need” because of the additional support they require.

    That means your local authority may have a duty to assess your child’s needs and consider what services could help your family.


    Does My Child Need a Diagnosis?

    Not always.

    While a diagnosis can help explain your child’s needs, the assessment should focus on the impact those needs have on your child and your family, rather than the diagnosis alone.


    What Support Could Be Available?

    Every family’s situation is different, and support depends on your child’s assessed needs.

    Following an assessment, a local authority may consider providing:

    • Short Breaks (sometimes called respite care)
    • Support workers
    • Home adaptations or specialist equipment
    • Family support services
    • Help accessing activities in the community
    • Practical support to help keep your child safely at home

    Not every family will receive every service, but many parents never realise these options even exist.


    What Are Short Breaks?

    Short Breaks are designed to give disabled children opportunities to enjoy activities while giving parents and carers a chance to rest and recharge.

    They can include:

    • After-school activities
    • Holiday clubs
    • Overnight stays (where appropriate)
    • Support workers spending time with your child
    • Community-based activities

    The aim is to support the whole family and help prevent situations from reaching crisis point.

    The Breaks for Carers of Disabled Children Regulations 2011 require local authorities to provide a range of short break services and publish information about what is available locally.


    Can I Ask for a Carer’s Assessment?

    Yes.

    If you’re caring for a disabled child, you can ask your local authority to assess your family’s needs.

    A Carer’s Assessment looks at how caring affects your own wellbeing, including:

    • Your physical health
    • Your mental health
    • Your ability to work
    • Relationships within the family
    • Whether you’re getting enough rest
    • What support would help you continue caring safely

    Many parents feel guilty asking for help.

    You shouldn’t.

    The purpose of these assessments is to identify support before families reach breaking point.


    What If My Child Is Safe at Home?

    You don’t have to wait until you’re in crisis.

    The whole point of early support is to prevent problems becoming bigger.

    If you’re struggling, it’s okay to ask for help before things become unmanageable.


    How Do I Request an Assessment?

    Contact your local authority’s Children’s Services department and ask for:

    A Children Act 1989 Section 17 Child in Need Assessment.

    Explain:

    • Your child’s needs.
    • How those needs affect daily life.
    • The impact caring is having on your family.
    • What support you believe would help.

    Provide any evidence you have, such as:

    • Medical reports.
    • School reports.
    • Occupational Therapy reports.
    • CAMHS reports.
    • DLA award letters.
    • Professional assessments.

    Remember…

    Support isn’t awarded simply because of a diagnosis.

    It’s awarded because of need.

    The clearer you can explain the impact on everyday life, the easier it is for professionals to understand why support is required.


    Final Thoughts

    One thing I hear over and over again is:

    “Nobody told us these rights existed.”

    Families shouldn’t have to discover their rights by accident.

    Knowing what’s available doesn’t guarantee you’ll receive every service, but it does mean you can ask the right questions and ensure your family’s needs are properly considered.

    If you’re caring for a disabled child and you’re struggling, don’t wait until you’re exhausted.

    Start the conversation.

    Ask what support is available.

    You may be surprised by what your local authority can offer once your family’s needs have been assessed.


    Need more help?

    At AskEllie, we help families understand their rights, navigate EHCPs, DLA, PIP and SEND law, and explain complex processes in plain English.

    Visit AskEllie.co.uk for more practical guidance and support.

  • Great British Summer Savings Explained: How SEND Families Could Save Money on Days Out This Summer

    If you’re planning days out with your children this summer, there’s a new Government scheme you may not have heard about.

    It’s called Great British Summer Savings, and it could help reduce the cost of family activities during the school holidays.

    For many SEND families, the summer holidays can be particularly expensive. Finding places your child enjoys, planning around sensory needs, and managing additional costs all add up.

    Here’s everything you need to know.

    What Is Great British Summer Savings?

    The Government has introduced a temporary reduction in VAT from 20% to 5% on a range of family-friendly activities.

    The scheme runs from:

    25 June 2026 until 1 September 2026

    The aim is to make family days out more affordable during the school holidays.

    What Is Included?

    The scheme covers many types of attractions, including:

    • Theme parks
    • Zoos
    • Wildlife parks
    • Safari parks
    • Soft play centres
    • Adventure parks
    • Aquariums
    • Museums (where eligible)
    • Nature reserves
    • Children’s cinema tickets
    • Family cinema tickets
    • Children’s theatre tickets
    • Children’s meals at participating restaurants (usually when eaten on-site).

    Attractions Already Taking Part

    Many well-known attractions have confirmed they are passing on the VAT saving, including:

    • Alton Towers
    • LEGOLAND Windsor
    • Chessington World of Adventures
    • Thorpe Park
    • Warwick Castle
    • Longleat
    • Peppa Pig World
    • SEA LIFE attractions
    • London Eye (Merlin attractions)
    • Cadbury World
    • Odeon Cinemas
    • Vue Cinemas
    • Cineworld.

    Restaurants Taking Part

    Several major restaurant chains have also confirmed they are reducing the price of children’s meals, including:

    • McDonald’s (including drive-thru and app orders, excluding delivery)
    • Nando’s
    • Wetherspoons
    • Greene King pubs.

    Is Every Attraction Included?

    No.

    This is the part many people miss.

    While the Government has introduced the VAT reduction, individual businesses decide whether and how they pass the saving on to customers.

    Some are offering the full reduction.

    Some may only offer part of it.

    Others may choose not to participate at all.

    What If I’ve Already Booked?

    Some attractions, such as Longleat, have said they will automatically refund the difference if you booked before the scheme started.

    Others have said existing bookings won’t be adjusted.

    It’s worth checking directly with the attraction before assuming your booking qualifies.

    How Do I Find Out If Somewhere Is Participating?

    Before booking, simply ask.

    You could email, call or message the attraction and ask:

    “Hi, I just wondered whether you’re taking part in the Government’s Great British Summer Savings scheme and whether the temporary VAT reduction has been applied to your ticket prices or children’s meals?”

    Most businesses will be able to tell you straight away.

    You can also:

    • Check the attraction’s website.
    • Look at their social media pages.
    • Search for “Great British Summer Savings” alongside the attraction’s name.

    Why This Matters for SEND Families

    Many SEND families spend considerably more on school holiday activities than they would like.

    Finding autism-friendly days out, quieter sessions or places your child genuinely enjoys isn’t always easy—and when you find somewhere that works, you often return again and again.

    Even a small saving can make a real difference.

    If this scheme helps your family enjoy one extra day out this summer, it’s worth knowing about.

    Final Tip

    Before you book any attraction this summer, take two minutes to ask whether they’re taking part in Great British Summer Savings.

    A quick email or phone call could save you money.

    And if you discover a great attraction that is participating, let other families know.

    The more we share information like this, the more families can benefit.