Category: Uncategorized

  • How to Speak to a Child With PDA: 5 Things We’ve Learned as Parents

    If you’re parenting a child with PDA, you’ve probably experienced moments where a completely ordinary request suddenly becomes anything but ordinary.

    “Put your shoes on.”

    “Come downstairs for dinner.”

    “Time to turn the game off.”

    “Go and brush your teeth.”

    For many children, these are everyday instructions. But for a child with a PDA profile (Pathological Demand Avoidance), the way a request is communicated can make an enormous difference.

    Sometimes it isn’t necessarily what you’re asking.

    It’s how the demand feels to the child receiving it.

    As parents, we’ve learned that communication with a PDA child often requires us to rethink many of the traditional parenting approaches we were taught.

    Here are five things that can help.


    1. Sometimes, Fewer Words Are Better

    When a child is already overwhelmed, parents naturally want to explain.

    We explain why something needs to happen.

    We reassure.

    We negotiate.

    We repeat ourselves.

    But all of those extra words can unintentionally create even more pressure.

    A child who’s already dysregulated may simply not have the capacity to process everything you’re saying.

    Sometimes the most effective approach is:

    Short. Calm. Clear.

    Then stop talking.

    Give them time to process what you’ve said.

    Silence can feel uncomfortable as a parent because we’re desperate to resolve the situation.

    But filling that silence with more instructions, questions and explanations can sometimes make things harder.


    2. Build in Buffer Time Between Activities

    Transitions can be particularly difficult for some PDA children.

    Moving from:

    Gaming → dinner

    Home → school

    TV → bedtime

    Bedroom → leaving the house

    can involve suddenly stopping something predictable and moving towards something less predictable.

    Instead of:

    “Turn that off. We’re leaving now.”

    Try creating some warning around the transition.

    For example:

    “We’re probably going to start getting ready in about ten minutes.”

    Then allow some processing time.

    Some families find visual timers, routines or gentle reminders helpful.

    Others find these increase pressure.

    That’s an important point about PDA:

    There isn’t one strategy that works for every child.

    The aim is to understand what reduces pressure for your child.


    3. Choices Can Help — But Too Many Choices Can Backfire

    One of the most common pieces of advice given to PDA parents is:

    “Give them choices.”

    And there is good reasoning behind this.

    Having some autonomy can reduce the feeling that something is being imposed upon them.

    Instead of:

    “Go and brush your teeth.”

    you might try:

    “Would you rather brush your teeth before or after you get changed?”

    But there’s another side to this.

    Too many choices can become overwhelming.

    If a child is already anxious or dysregulated, asking them to choose between five different options can create another decision they now have to manage.

    Sometimes two simple choices are enough.

    And importantly, low-demand parenting doesn’t mean handing all responsibility to the child.

    Children still need adults who feel safe, predictable and capable of guiding them.

    Think calm leadership rather than control.


    4. Change the Language, Not Necessarily the Goal

    Sometimes you can keep exactly the same goal while completely changing the way you approach it.

    Instead of:

    “You need to put your shoes on.”

    You might try:

    “I wonder where those shoes have disappeared to?”

    Instead of:

    “Get ready. We’re leaving.”

    Try:

    “I’m going to start getting ready.”

    Instead of:

    “You have to tidy this up.”

    You could try:

    “I reckon we could get this cleared ridiculously quickly together.”

    Humour can also be incredibly powerful.

    Turning something into a joke, challenge, game or shared activity can sometimes remove the feeling of confrontation.

    The destination hasn’t necessarily changed.

    You’ve simply taken a different road to get there.


    5. Don’t Match Their Energy

    This may be one of the hardest things to do.

    Your child’s anxiety rises.

    They start arguing.

    You become stressed.

    You explain more.

    They become louder.

    You become firmer.

    Suddenly everyone is escalating.

    As parents, we’re human. Our nervous systems respond too.

    But when possible, try to move in the opposite direction.

    If they become louder…

    Become quieter.

    If they become faster…

    Become slower.

    If they become overwhelmed…

    Use fewer words.

    You’re trying to communicate something very important without necessarily saying it:

    “I’m calm. I’m still here. This situation is manageable.”

    That sense of safety can sometimes be far more powerful than another instruction.


    PDA Parenting Doesn’t Mean Having No Boundaries

    This is an important distinction.

    A low-demand or PDA-informed approach isn’t simply:

    “Let the child do whatever they want.”

    Children still need boundaries.

    They still need adults to keep them safe.

    They still need guidance.

    The difference is recognising that traditional approaches based heavily on compliance, consequences, rewards or increasing pressure may not always produce the intended result for a child with a PDA profile.

    If increased pressure increases anxiety, which then increases avoidance, adding more pressure can create a cycle that becomes increasingly difficult for everyone.

    The question becomes:

    How can we achieve what needs to happen while creating the least unnecessary pressure possible?


    What About the Real World?

    This is something parents understandably worry about.

    You might think:

    “That’s fine at home, but the rest of the world isn’t going to communicate like this.”

    That’s true.

    Teachers, employers, strangers and other adults won’t necessarily understand PDA.

    But supporting a child appropriately now isn’t about protecting them from every demand forever.

    It’s about helping them develop regulation, confidence, communication and self-understanding so they are better equipped to navigate those demands as they grow.

    We shouldn’t deliberately make childhood harder simply because adulthood may sometimes be difficult.


    One Trusted Adult Can Make an Enormous Difference

    One thing we hear repeatedly from SEND families is the importance of relationships.

    A teacher who understands.

    A teaching assistant who notices the warning signs.

    A family member who doesn’t immediately escalate.

    A professional who listens.

    For a child who frequently feels misunderstood or controlled, having even one adult who genuinely understands themcan make an enormous difference.

    Sometimes the relationship comes before the strategy.


    And Parents Won’t Get It Right Every Time

    Neither do we.

    There will be mornings when you’re late.

    Days when you’re exhausted.

    Moments when you’ve asked nicely seventeen times and eventually find yourself shouting:

    “JUST PUT YOUR SHOES ON!”

    That doesn’t erase everything you’re trying to do.

    PDA-informed parenting isn’t about becoming a perfectly calm parent who never gets frustrated.

    It’s about gradually understanding your child better.

    Sometimes you’ll recognise the trigger beforehand.

    Sometimes you’ll realise afterwards.

    Both are learning.


    The Biggest Shift: Understanding the “Why”

    Perhaps the biggest change comes when we stop asking:

    “How do I make my child comply?”

    and start asking:

    “What is making this difficult for them right now?”

    Is it anxiety?

    A transition?

    Sensory overload?

    Loss of autonomy?

    Exhaustion?

    Uncertainty?

    Too many instructions?

    Understanding the reason doesn’t mean every behaviour suddenly becomes acceptable.

    It simply gives us a better chance of responding effectively.

    Because when we understand the why behind behaviour, we can start changing what happens next.


    A Final Note About PDA

    PDA is commonly described as a profile associated with autism, but terminology, recognition and clinical practice around PDA remain debated and can vary between professionals and services.

    Not every autistic child who avoids demands has a PDA profile, and strategies that work brilliantly for one child may be completely ineffective for another.

    The goal isn’t to find a perfect parenting formula.

    It’s to understand the individual child standing in front of us.

    And sometimes the smallest change in language can make the biggest difference.

    What communication strategy has made the biggest difference for your child?

  • No School Place for September? What SEND Parents Need to Know

    For most families, August is spent buying school uniforms, labelling PE kits and getting children ready for the new school year.

    But for thousands of SEND families, August is filled with uncertainty.

    One question keeps coming up:

    “What happens if my child still doesn’t have a school place for September?”

    Sadly, this is a reality many families face every year.


    You’re Not Alone

    Every summer, I hear from parents whose child:

    • Still doesn’t have a named school.
    • Has been refused by multiple schools.
    • Is waiting for an EHCP to be finalised.
    • Has an appeal or Tribunal coming up.
    • Has been told there simply isn’t a suitable place available.

    The emotional toll on families is enormous.

    Children become anxious.

    Parents lie awake wondering what’s going to happen.

    And September gets closer.


    If Your Child Has an EHCP

    If your child has an Education, Health and Care Plan (EHCP), it’s important to remember this:

    Your local authority has a legal duty to secure the educational provision specified in your child’s EHCP.

    If your child has no school place, that doesn’t mean this duty simply disappears.

    The local authority still needs to consider how your child’s educational needs will be met while a suitable placement is being found.


    Keep Everything in Writing

    If your child still has no placement, now is the time to communicate in writing.

    Ask your local authority:

    • What educational provision is being arranged from September?
    • What interim support will be available?
    • What steps are being taken to secure a suitable placement?
    • When do they expect this to be resolved?

    Keeping a written record is important if delays continue.


    Don’t Assume They Already Know

    Many parents assume:

    “They know my child doesn’t have a school.”

    “They’ll contact me.”

    “They’re sorting it.”

    Unfortunately, that’s not always the case.

    If you haven’t received clear information, don’t be afraid to ask.


    Your Child Is Still Entitled to an Education

    One of the biggest misconceptions is that if there isn’t a school place available, families simply have to wait.

    Children remain entitled to an education.

    What that looks like will depend on the individual circumstances, but your local authority should be considering how your child’s educational needs can be met while longer-term arrangements are being made.


    This Isn’t Your Fault

    One of the hardest parts of this process is the guilt many parents carry.

    They worry they’ve done something wrong.

    That they should have fought harder.

    That they’ve somehow failed their child.

    You haven’t.

    The lack of suitable school places is a systemic issue affecting families across the country.


    What You Can Do Today

    If your child still has no school place:

    ✅ Contact your local authority for an update.

    ✅ Ask what educational provision will be in place from September.

    ✅ Keep all communication in writing.

    ✅ Keep copies of every email and letter.

    ✅ Continue to advocate for your child calmly and consistently.


    The Bigger Picture

    No parent should spend the summer wondering whether their child will have an education in September.

    Yet for many SEND families, that’s exactly what’s happening.

    Every child deserves more than a place on a waiting list.

    Every child deserves an education that is suitable, safe and capable of meeting their individual needs.


    AskEllie Can Help

    If you’re struggling because your child still has no school place, you’re not alone.

    At AskEllie, we help families understand their rights, navigate EHCP issues and communicate more confidently with local authorities and schools.

    Sometimes, knowing the right questions to ask can make all the difference.

    If your child still has no school place for September, take one step today.

    Ask the question.

    Keep it in writing.

    And remember—you are advocating for something your child is entitled to, not asking for a favour.

  • 5 Little-Known Resources Every SEND Family Should Know About

    Raising a child with special educational needs or disabilities (SEND) can feel overwhelming. Between school meetings, appointments, paperwork and daily life, it’s easy to miss out on support that could make a real difference.

    The good news is that there are several resources available across the UK that many families simply don’t know exist.

    Here are five worth checking today.


    1. The Access Card

    The Access Card is one of the most useful disability cards available in the UK.

    Rather than repeatedly explaining your child’s needs at different venues, the card provides a recognised way of communicating the adjustments your child may require.

    Depending on your child’s needs, it can help with:

    • Free companion tickets
    • Queue adjustments
    • Accessible seating
    • Easier access to attractions and events

    It’s accepted at more than 1,000 venues across the UK, including cinemas, theme parks, arenas and visitor attractions.

    If your child receives Disability Living Allowance (DLA), Personal Independence Payment (PIP), or has another qualifying disability, it’s well worth looking into.


    2. The Max Card

    The Max Card gives eligible SEND families discounted entry to hundreds of attractions across the UK.

    Depending on your local authority, this may include:

    • Zoos
    • Theme parks
    • Soft play centres
    • Swimming pools
    • Museums
    • Leisure centres
    • Family attractions

    Many local authorities provide the card free of charge to eligible families, although eligibility criteria vary.

    If your child has an EHCP, receives DLA or accesses certain SEND services, you may qualify.

    It’s always worth checking with your local authority.


    3. Your Council’s SEND Local Offer

    Every local authority in England must publish a SEND Local Offer.

    Unfortunately, many parents have never heard of it.

    The Local Offer is designed to bring together information about services available in your area, including:

    • Holiday activities
    • Short breaks
    • Support groups
    • Local charities
    • Youth clubs
    • Leisure opportunities
    • Parent support services
    • Health services
    • Education advice

    Every area is different, so it’s worth searching online for:

    “[Your Council] SEND Local Offer”

    You might be surprised by what’s available.


    4. Free SEND Advice Organisations

    Trying to understand education law or benefits can feel incredibly daunting.

    Fortunately, several organisations provide free, independent advice.

    Some of the best-known include:

    Contact

    Contact provides practical information for families raising disabled children, including advice about benefits, education and family life.

    IPSEA

    IPSEA specialises in SEND law and can help parents understand their legal rights around Education, Health and Care Plans (EHCPs), school support and appeals.

    SENDIASS

    Every local authority has a SEND Information, Advice and Support Service (SENDIASS), offering free and impartial advice to families.

    Getting the right advice early can often prevent months of unnecessary stress.


    5. Merlin’s Magic Wand

    Many families have never heard of Merlin’s Magic Wand, but it provides unforgettable experiences for children facing serious illness or disability.

    Eligible families may be able to enjoy free visits to Merlin attractions, including:

    • LEGOLAND
    • SEA LIFE Centres
    • Madame Tussauds
    • Warwick Castle
    • Other participating Merlin attractions

    The charity exists to help create magical memories for children and families who may be facing significant challenges.

    Eligibility criteria apply, so it’s worth checking whether your child qualifies.


    Don’t Miss Out on Support

    One of the biggest frustrations we hear from SEND families is:

    “Nobody ever told us this existed.”

    Too often, parents only discover helpful resources through other families rather than professionals.

    Taking just an hour to explore what’s available could save you money, reduce stress and open up opportunities your family didn’t know existed.

    If you know another SEND parent who might benefit from these resources, please share this article with them.

    Sometimes the smallest piece of information can make the biggest difference.


    Need More Help?

    At AskEllie, we help SEND families navigate:

    • EHCPs
    • Disability Living Allowance (DLA)
    • Mandatory Reconsiderations
    • DLA Renewals
    • Change of Circumstances applications
    • SEND rights and education support

    Our goal is simple: to make sure families understand their rights and don’t miss out on the support they’re entitled to.

  • The Truth About ADHD and Autism Diagnoses: What the New Government Report Actually Says

    “Why does it feel like every other child has ADHD or autism these days?”

    It’s a question many parents, teachers and even politicians have asked.

    Some people believe we’re seeing an explosion in ADHD and autism.

    But a new independent government report suggests something very different.

    The report argues that the issue isn’t that dramatically more children have ADHD or autism—it’s that our education and healthcare systems have made a diagnosis the gateway to support.

    That distinction matters.


    Have ADHD and Autism Really Increased?

    One of the report’s most important findings is that when researchers looked at the proportion of children who meet the criteria for ADHD or autism, the figures have remained relatively stable over time.

    So why do diagnosis numbers appear to be rising?

    Because more families are coming forward for assessments than ever before.

    That doesn’t necessarily mean more children have ADHD or autism.

    It means more children are finally being recognised.


    Girls Have Been Missed for Years

    One of the strongest messages in the report is that girls have historically been overlooked.

    For decades, autism and ADHD were largely understood through research carried out on boys.

    Many girls:

    • Masked their difficulties.
    • Copied other children socially.
    • Were labelled as anxious.
    • Were described as shy or sensitive.
    • Worked incredibly hard to hide how much they were struggling.

    As a result, thousands reached adolescence—or even adulthood—without anyone recognising they were autistic or had ADHD.

    Many are only now receiving the diagnosis they should have had years ago.

    This isn’t evidence of “over-diagnosis.”

    It’s evidence that we’re becoming better at recognising girls whose needs were previously missed.


    Why Are Waiting Lists So Long?

    The report highlights an astonishing increase in ADHD assessment waiting lists.

    In 2019, around 21,000 children were waiting for an ADHD assessment.

    By the end of last year, that figure had risen to around 270,000.

    Those numbers understandably raise questions.

    But the report suggests the waiting lists themselves are not proof that ADHD is suddenly more common.

    Instead, they reflect growing demand for assessments within a system where diagnosis has become the key to accessing support.


    Parents Aren’t Chasing Labels

    One of the most important messages in the report is this:

    Parents are not simply seeking diagnoses for the sake of a label.

    They’re seeking help.

    For many families, a diagnosis can unlock:

    • School support.
    • Reasonable adjustments.
    • EHCP assessments.
    • Exam access arrangements.
    • Referrals to specialist services.
    • Better understanding from professionals.

    If support is largely dependent on diagnosis, it’s entirely understandable why parents pursue one.

    As the report suggests, families are responding rationally to the way the system currently works.


    The Real Crisis Isn’t Diagnosis

    Perhaps the most worrying part of the report isn’t about ADHD or autism at all.

    It’s about children’s mental health.

    The report highlights increasing levels of:

    • Anxiety.
    • Loneliness.
    • Sleep difficulties.
    • Problems concentrating.
    • Reduced confidence.

    These trends began before the pandemic, although COVID-19 appears to have made existing problems worse.

    Meanwhile, many children spend months—or even years—waiting for an assessment while continuing to struggle at school.


    Teachers Often Spot the Need First

    Long before an assessment takes place, teachers frequently notice that something isn’t right.

    A child may struggle to:

    • Sit still.
    • Concentrate.
    • Regulate emotions.
    • Cope with sensory overload.
    • Manage friendships.
    • Access learning.

    Yet many schools feel limited in what support they can provide until a formal diagnosis is made.

    By the time assessments finally happen, some children have already fallen significantly behind.


    Support Should Follow Need—Not Diagnosis

    Perhaps the most important conclusion from the report is that support should be based on a child’s needs, not solely on whether they have a diagnosis.

    If a child is clearly struggling in school today, they shouldn’t have to wait years for a label before meaningful help begins.

    Early intervention benefits everyone.

    It reduces distress for children, eases pressure on families, and gives schools a better chance of supporting pupils before difficulties escalate.


    What This Means for SEND Families

    Many parents reading this will recognise exactly what the report describes.

    You’ve probably never wanted a label.

    You’ve wanted your child to receive the support they need.

    For too many families, diagnosis has become the only door into that support.

    The report suggests it’s time to rethink that approach.

    Children shouldn’t have to become more anxious, fall further behind or wait years for help simply because they’re still in a diagnostic queue.

    Every child deserves support when they need it—not just when the paperwork catches up.

    Full Report click here


    Final Thoughts

    The conversation shouldn’t be about whether “too many children have ADHD or autism.”

    The real question is:

    Why do so many families feel they need a diagnosis before anyone will listen?

    If we can build a system that responds to children’s needs earlier—whether or not a diagnosis has been confirmed—we’ll spend less time debating labels and more time helping children thrive.

    That’s a goal every parent, teacher and policymaker should be able to support.

  • Why Do Some Children Always End Up in Their Parents’ Bed? What Psychology Says

    If your child happily falls asleep in their own bed but somehow appears beside you at 2am, 3am or 4am, you’re certainly not alone.

    For many families—particularly those raising autistic or ADHD children—this becomes part of everyday life.

    Parents often say:

    “She goes to sleep perfectly in her own bed… but every night she quietly climbs into ours.”

    “He doesn’t even wake us. We just realise he’s there.”

    “She touches my face just to check I’m there, then goes straight back to sleep.”

    So why does it happen?

    The answer may have more to do with your child’s nervous system than their bedtime routine.


    It’s Often About Feeling Safe

    As children move through the lighter stages of sleep during the night, it’s normal for them to wake briefly.

    Most adults do this too—we simply don’t remember it.

    When some children wake, they quickly settle themselves back to sleep.

    Others instinctively seek the person who makes them feel safest.

    That person is usually a parent.

    According to attachment theory, developed by psychologist John Bowlby and expanded by Mary Ainsworth, children naturally use their primary caregiver as a “secure base.” When they feel uncertain or unsettled, moving closer to that trusted person can help them feel safe enough to relax again.


    Why Is It So Common in Autistic and ADHD Children?

    Many autistic and ADHD children experience differences that can make overnight waking more challenging.

    These can include:

    • Increased anxiety
    • Sensory sensitivities
    • Difficulty regulating emotions
    • Differences in sleep patterns
    • A nervous system that stays on high alert

    When they wake during the night, their body may struggle to return to a calm state on its own.

    Finding Mum or Dad isn’t necessarily about wanting attention.

    It’s often about helping their nervous system feel safe again.


    Why Do They Go Straight Back to Sleep?

    One of the most common things parents say is:

    “They don’t even talk. They just get into bed and fall asleep immediately.”

    That actually makes sense.

    Many children aren’t looking for a conversation.

    They’re looking for reassurance.

    Sometimes that’s:

    • Hearing your breathing
    • Feeling your warmth
    • Holding your hand
    • Touching your arm or cheek
    • Simply knowing you’re nearby

    Once their brain receives that signal of safety, they can often relax enough to drift straight back to sleep.


    Does This Mean You’ve Created a “Bad Habit”?

    Parents often worry that allowing a child into their bed will make the behaviour worse.

    The reality is more complicated.

    For some children, consistent routines and gradually encouraging independent sleep can help.

    For others—particularly children with autism, ADHD or high levels of anxiety—the need for reassurance may be linked to how their nervous system responds to stress rather than simply a behavioural habit.

    There isn’t a one-size-fits-all solution.


    What Can Help?

    Every child is different, but some families find these approaches helpful:

    Keep bedtime predictable

    A calm, consistent routine helps many children feel more secure before sleep.

    Create a comforting sleep environment

    Weighted blankets (where appropriate), favourite soft toys, night lights or white noise can help some children feel more settled.

    Reassure without adding pressure

    If your child wakes overnight, responding calmly and consistently can help them feel safe without increasing anxiety.

    Understand the “why”

    Instead of asking:

    “Why won’t they stay in bed?”

    Try asking:

    “What is my child needing in this moment?”

    That small change in perspective can completely transform how you respond.


    You’re Not Alone

    If your child regularly appears beside your bed during the early hours, it doesn’t automatically mean you’re doing anything wrong.

    For many families—especially those raising neurodivergent children—it reflects a child seeking safety, comfort and regulation rather than attention or defiance.

    As children grow and develop confidence in their own ability to self-soothe, many naturally begin spending more of the night in their own bed.

    Until then, understanding why it happens can often reduce the guilt and frustration many parents carry.

    Sometimes, what looks like a “sleep problem” is actually a child quietly saying:

    “I just need to know you’re still there.”


    For more practical advice on autism, ADHD, PDA and parenting, visit AskEllie.co.uk, where thousands of families access free guidance and support every month.

  • ADHD in Women: Could It Be One of the Most Under-Recognised Medical Conditions?

    For years, countless women have been told they’re simply disorganised, emotional, forgetful or “not trying hard enough.”

    Many have spent decades blaming themselves without ever realising there could be a medical explanation.

    Today, more doctors and researchers are recognising that ADHD in women has often been overlooked—partly because it can look very different from the stereotypes many people associate with ADHD.

    ADHD Doesn’t Always Look Like Hyperactivity

    When people think about ADHD, they often picture a young boy who can’t sit still.

    But many women experience ADHD very differently.

    Instead of obvious hyperactivity, they may struggle with:

    • Constant overwhelm
    • Forgetfulness
    • Chronic disorganisation
    • Emotional sensitivity
    • Executive dysfunction
    • Mental exhaustion
    • Difficulty starting or finishing tasks
    • Feeling like they’re constantly “behind”

    Many become experts at masking these difficulties, meaning friends, family and even healthcare professionals may never realise they’re struggling.


    The Hormone Connection

    One reason ADHD in women has received more attention recently is because of growing research into the role hormones may play.

    Doctors and researchers believe that oestrogen appears to influence dopamine, one of the key brain chemicals involved in ADHD.

    Dopamine helps regulate:

    • Attention
    • Motivation
    • Memory
    • Executive functioning
    • Reward
    • Emotional regulation

    Because hormone levels naturally change throughout a woman’s life, ADHD symptoms may also fluctuate.


    Why Some Women Feel Worse Around Their Period

    Many women with ADHD report that their symptoms become noticeably more difficult just before and during their period.

    They often describe experiencing:

    • More brain fog
    • Increased forgetfulness
    • Greater emotional sensitivity
    • Feeling overwhelmed more easily
    • Increased executive dysfunction
    • Lower motivation
    • Difficulty concentrating

    Researchers think this may be linked to falling oestrogen levels during this stage of the menstrual cycle.

    Although everyone’s experience is different, many women say these changes are significant enough to affect work, relationships and everyday life.


    ADHD and Menopause

    Menopause is another stage where many women first realise something isn’t quite right.

    As oestrogen levels decline over time, some women report that coping strategies they’ve relied on for years suddenly stop working.

    Tasks that once felt manageable become overwhelming.

    Masking becomes harder.

    Everyday responsibilities can begin to feel impossible.

    For some women, this is the point at which they finally seek an ADHD assessment.


    Executive Dysfunction Is More Than Forgetfulness

    One of the biggest misconceptions about ADHD is that it’s simply a problem with paying attention.

    In reality, many people find the hardest part is executive dysfunction.

    This can affect your ability to:

    • Plan tasks
    • Organise your day
    • Prioritise
    • Start activities
    • Finish projects
    • Manage time
    • Remember appointments
    • Switch between tasks

    You know exactly what needs to be done.

    Your brain simply won’t cooperate.


    The Emotional Toll

    Living with undiagnosed ADHD can have a huge emotional impact.

    Many women spend years believing they’re:

    • Lazy
    • Careless
    • Disorganised
    • Bad at adult life
    • Letting everyone down

    Over time, constantly fighting your own brain can become exhausting.

    Many women also describe experiencing intense emotional reactions to criticism or perceived rejection, sometimes referred to as Rejection Sensitive Dysphoria (RSD). While RSD is widely discussed within the ADHD community, it is not currently recognised as an official diagnostic feature of ADHD.


    Could You Have ADHD?

    Everyone occasionally forgets things or feels overwhelmed.

    But if these difficulties have been present since childhood and consistently affect your work, education, relationships or everyday life, it may be worth exploring further.

    Common signs include:

    • Frequently losing important items
    • Time blindness
    • Chronic lateness
    • Difficulty starting tasks
    • Constant overwhelm
    • Forgetting appointments
    • Emotional dysregulation
    • Feeling mentally exhausted from masking
    • Struggling to keep organised despite trying hard

    What Should You Do Next?

    If this article resonates with you, the first step is to speak with your GP.

    They can discuss your symptoms, consider other possible causes and, if appropriate, refer you for an ADHD assessment.

    Getting assessed doesn’t mean you’ll receive a diagnosis—but it can be the beginning of understanding yourself better and accessing the right support.


    Final Thoughts

    For many women, discovering they have ADHD isn’t about finding an excuse.

    It’s about finally finding an explanation.

    Understanding how ADHD can present differently in women—and how hormonal changes may influence symptoms—has helped many people realise they were never “lazy” or “broken.”

    They were trying to navigate life with a neurodevelopmental condition that had simply gone unrecognised.

    As awareness continues to grow, the hope is that fewer women will spend decades wondering why life has always felt harder than it seemed to for everyone else.


    Further reading and support:

    • NHS – ADHD in adults
    • ADHD UK
    • ADDitude Magazine
    • National Institute of Mental Health (NIMH)

    If you think you may have ADHD, remember that support is available, and you don’t have to work it out on your own.

  • Free and Low-Cost Holidays for Families This Summer: 5 Places to Check

    For many families, the summer holidays are something to look forward to.

    But if you’re raising a child with SEND, or you’re already struggling with the cost of living, the thought of paying for days out or a family holiday can feel impossible.

    The good news is that there are grants, schemes and discounted holidays available that many parents simply don’t know about.

    Here are five places worth checking before you spend your own money.


    1. Holiday Grants Through Charities

    There are charities across the UK that help families who couldn’t otherwise afford a break away.

    Depending on your circumstances, you may be able to receive help towards the cost of a holiday, short break or family trip.

    One well-known organisation is the Family Holiday Charity, but there are also many smaller charities and local organisations that offer similar support.


    2. Holiday Activities and Food (HAF) Programme

    If your child is eligible for benefits-related free school meals, your local authority may offer free holiday clubs through the Holiday Activities and Food (HAF) Programme.

    These often include:

    • Free meals
    • Sports
    • Arts and crafts
    • Outdoor activities
    • SEND-friendly sessions in some areas

    Availability varies between councils, so it’s worth searching:

    “HAF programme + your council name.”


    3. Local Council Support

    Many councils provide free or heavily subsidised activities during the summer holidays.

    These can include:

    • Swimming sessions
    • Museums
    • Family fun days
    • Sports activities
    • Nature walks
    • SEND-specific events

    Unfortunately, these schemes aren’t always well advertised, so it’s worth checking your council’s website or Facebook page.


    4. The Sun Holiday Deals

    Every year, The Sun runs one of the UK’s most popular low-cost holiday promotions.

    By collecting promotional codes, families can often book UK holiday park breaks for a fraction of the usual price.

    While they’re not free, they can be one of the cheapest ways to enjoy a family break during the school holidays.


    5. Search for Local Holiday Grants

    One of the biggest mistakes parents make is assuming there isn’t any help available locally.

    Many areas have:

    • Community foundations
    • Local charities
    • Family support organisations
    • Rotary Clubs
    • Lions Clubs
    • Church groups
    • Children’s charities

    that quietly provide grants or funding for holidays, day trips and family activities.

    Try searching:

    • Holiday grants + your town
    • Family holiday support + your county
    • Children’s holiday fund + your area
    • Family support grants + your local authority

    You might be surprised by what’s available.


    Don’t Forget Your Child’s SEND Support

    If your child has an EHCP, receives support from social care, or has a disability, it’s also worth asking:

    • Your school’s SENDCo
    • Your family support worker
    • Your local SENDIASS service
    • Your local parent carer forum

    They often know about local schemes that aren’t widely advertised.


    A Final Thought

    Summer shouldn’t be a time when families feel guilty because they can’t afford expensive days out.

    There is support available—but much of it relies on parents knowing where to look.

    If you’ve discovered a brilliant holiday grant, charity or local scheme that helped your family, share it with other parents. One recommendation could make a real difference to someone who thought a holiday simply wasn’t possible this year.


    Need More SEND Support?

    If you’re looking for practical guidance on EHCPs, DLA, PIP, school issues, autism, ADHD or navigating the SEND system, visit AskEllie for clear, easy-to-understand advice designed specifically for families.

    You’re not alone—and together we can help more parents find the support they’re entitled to.

  • 5 Signs Your Daughter Isn’t “Just Hormonal”… It Could Actually Be Autism

    As parents, we’re often told:

    “It’s just hormones.”

    “She’s just being a typical teenage girl.”

    “She’ll grow out of it.”

    But what if that’s not the whole story?

    Over the past few years, I’ve spoken to hundreds of families whose daughters weren’t recognised as autistic until their teenage years. Many parents told me they spent years believing their daughter was “just anxious” or “just hormonal,” only to later discover there was much more going on.

    This article isn’t about diagnosing autism. It’s about recognising signs that may be worth exploring with a healthcare professional.

    1. Everything Changed When She Started Secondary School

    This is probably the most common story I hear.

    Parents often say:

    “She coped in primary school…”

    “Then she started secondary school and everything fell apart.”

    Secondary school brings:

    • Multiple teachers.
    • Constant transitions.
    • Bigger classrooms.
    • Louder environments.
    • Increased social expectations.
    • More independence.

    For many autistic girls, it’s not that autism suddenly appears.

    It’s that the demands become too great to keep masking.

    2. She Holds It Together at School… Then Melts Down at Home

    One of the biggest misconceptions is:

    “School says she’s absolutely fine.”

    Many autistic girls become experts at masking.

    They spend the entire school day:

    • Watching other children.
    • Copying behaviour.
    • Hiding sensory discomfort.
    • Forcing eye contact.
    • Trying to appear “normal.”

    By the time they get home, they’re exhausted.

    Home often becomes the one place where they finally feel safe enough to stop pretending.

    3. Friendships Suddenly Become Incredibly Difficult

    As children get older, friendships become much more complex.

    Many autistic girls begin to struggle with:

    • Group dynamics.
    • Hidden social rules.
    • Bullying.
    • Feeling left out.
    • Constantly worrying they’ve said the wrong thing.

    Parents often notice their daughter withdrawing socially or becoming increasingly anxious about school.

    4. Everyone Thinks She’s “Just Moody”

    Teenagers naturally experience emotional changes.

    But there’s a difference between typical teenage behaviour and a young person whose nervous system is overwhelmed every single day.

    Autistic girls may experience:

    • Emotional exhaustion.
    • Sensory overload.
    • Burnout.
    • Shutdowns.
    • Meltdowns.

    These are often misunderstood as attitude or hormones.

    5. Anxiety Seems to Take Over Everyday Life

    Many autistic girls are initially diagnosed with anxiety before autism is recognised.

    They may experience:

    • School refusal or EBSA.
    • Panic attacks.
    • Difficulty sleeping.
    • Constant worrying.
    • Physical symptoms such as stomach aches or headaches before school.

    While anxiety can exist on its own, for some girls it’s actually a sign that they’ve been masking autism for years.

    Why Girls Are Often Diagnosed Later

    Historically, autism research focused largely on boys.

    We now know many autistic girls present differently.

    They may:

    • Copy other children.
    • Be quieter.
    • Mask their difficulties.
    • Work incredibly hard to fit in.
    • Hide how overwhelmed they really feel.

    Because of this, many aren’t recognised until secondary school, when the social and sensory demands become too much.

    This Doesn’t Automatically Mean Autism

    Every child is different.

    Experiencing one or even several of these signs doesn’t automatically mean your daughter is autistic.

    However, if you recognise many of these experiences, it’s worth discussing your concerns with your GP, school or another healthcare professional who can advise on the next steps.

    Final Thoughts

    Perhaps the biggest message I want parents to take away is this:

    Your daughter isn’t “too sensitive.”

    She isn’t “too dramatic.”

    She isn’t “just hormonal.”

    She may simply be working incredibly hard every single day to navigate a world that feels overwhelming.

    Understanding that can change everything.


    Need more SEND support?

    At AskEllie, we help families understand autism, ADHD, EHCPs, DLA, PIP and the SEND system in plain English.

    Visit AskEllie.co.uk for practical guidance, support and resources for families navigating life with neurodivergent children.

  • 5 Benefits You Might Be Missing If You Receive DLA or PIP

    When a child or adult is awarded Disability Living Allowance (DLA) or Personal Independence Payment (PIP), many families assume that’s the end of the process.

    It isn’t.

    In fact, receiving DLA or PIP can open the door to a range of other benefits and support that many people simply aren’t told about.

    Here are five of the most important.


    1. Carer’s Allowance or the Carer Element of Universal Credit

    If you provide 35 hours or more of care each week, you may be entitled to additional financial support.

    Depending on your circumstances, this could be through:

    • Carer’s Allowance
    • The Carer Element of Universal Credit

    Many parents only discover this months—or even years—after their child’s DLA has been awarded.

    Some families have gone on to receive significant back payments, although this depends on individual circumstances and eligibility.

    If you’re caring for a disabled child or adult, it’s always worth checking what you’re entitled to.


    2. Blue Badge and Free Vehicle Tax

    If your child receives the Higher Rate Mobility Component of DLA, you may also qualify for:

    • Blue Badge
    • 100% free vehicle tax for one vehicle used for your child’s benefit.

    A Blue Badge can make everyday life much easier if your child struggles with mobility, safety, sensory overwhelm or walking long distances.

    Many families know about one of these benefits but not both.


    3. Free School Meals

    From the 2026/27 school year in England, all children whose parents receive Universal Credit are expected to become eligible for free school meals under the government’s expanded eligibility criteria.

    If your family receives Universal Credit, it’s worth checking with your local authority or your child’s school to make sure you’re receiving everything you’re entitled to.

    Free school meals can also unlock additional funding for schools through the Pupil Premium, helping schools provide extra support.


    4. Disabled Child Element of Universal Credit

    If your child receives DLA and you claim Universal Credit, you may also qualify for the Disabled Child Element.

    This can significantly increase the amount of Universal Credit your family receives each month.

    One important point:

    Many parents don’t realise they need to tell Universal Credit when their child is awarded DLA.

    If you don’t report the award, you may miss out on additional support.


    5. Disabled Facilities Grant (DFG)

    If your child’s disability means adaptations are needed at home, you may be able to apply for a Disabled Facilities Grant.

    Depending on your circumstances, this funding can help pay for things such as:

    • Accessible bathrooms.
    • Ramps.
    • Wider doorways.
    • Safe spaces.
    • Specialist equipment.
    • Other adaptations that help your child live safely at home.

    Many families have never heard of the Disabled Facilities Grant until someone tells them.


    Don’t Assume You’ll Automatically Receive Everything

    One of the biggest myths is that once DLA or PIP is awarded, every other benefit will automatically follow.

    Unfortunately, that’s often not the case.

    Many benefits require you to:

    • Tell Universal Credit about your award.
    • Make separate applications.
    • Request additional assessments.
    • Contact your local authority.

    That’s why understanding the wider support available is so important.


    Final Thoughts

    Every week I hear from parents who say:

    “I wish I’d known this sooner.”

    The benefits system can feel incredibly complicated, especially when you’re already caring for a disabled child or managing your own health.

    The good news is that help is available—but sometimes you have to know where to look.

    If you think you might be entitled to one of the benefits mentioned above, don’t assume the answer is “no.”

    Ask.

    Check.

    And get advice if you’re unsure.


    Need Help?

    At AskEllie, we help families understand disability benefits, EHCPs, SEND law and the wider support they may be entitled to.

    Visit AskEllie.co.uk for practical guidance and personalised support.

  • 5 SEND Rights Every Parent Should Know (But Many Are Never Told)

    One of the most common messages I receive from parents is:

    “I wish someone had told me this sooner.”

    The SEND system can feel overwhelming. Between schools, local authorities, health services and legal processes, many parents spend months—or even years—trying to work out what their child is actually entitled to.

    The good news is that there are important legal rights designed to protect children with SEND and their families.

    Here are five of the most important.


    1. You Can Request an EHCP Assessment Yourself

    Many parents believe they have to wait for the school to apply for an Education, Health and Care (EHC) needs assessment.

    You don’t.

    Under Section 36 of the Children and Families Act 2014, parents can write directly to their local authority requesting an EHC needs assessment.

    You do not need the school’s permission.

    If you believe your child may need an EHCP, you can make the request yourself.


    2. Your Child Still Has a Right to an Education If They Can’t Attend School

    Many families are told to simply wait while their child is too unwell, anxious or unable to attend school.

    However, under Section 19 of the Education Act 1996, local authorities have a duty to arrange suitable education for children who cannot attend school because of illness, exclusion or “otherwise.”

    For many children with EBSA (Emotionally Based School Avoidance), severe anxiety or unmet SEND needs, this can be an important legal protection.


    3. SEND Can Be Relevant in School Attendance Cases

    Many parents fear fines or prosecution when their child struggles to attend school.

    Attendance law is complex, and every case depends on its own facts.

    However, where non-attendance is linked to a child’s disability or unmet special educational needs, this may be highly relevant when decisions are made.

    If you’re facing attendance action, it’s important to seek advice rather than assuming you have no options.


    4. Schools Shouldn’t Wait for a Diagnosis Before Providing Support

    This surprises many parents.

    The SEND Code of Practice makes it clear that schools should identify and respond to a child’s needs—they should not delay support simply because a child is waiting for an autism, ADHD or other diagnosis.

    Support should be based on need, not labels.


    5. Your Child May Be Entitled to Free School Transport

    School transport isn’t only about distance.

    If your child’s SEND means they cannot reasonably walk to school or travel safely because of their needs, they may qualify for free home-to-school transport.

    This is often overlooked by families who assume it only applies to children attending specialist schools.


    Why Knowing Your Rights Matters

    Many parents spend years fighting simply because they weren’t told what the law already says.

    Understanding your rights helps you:

    • Ask the right questions.
    • Challenge incorrect information.
    • Make informed decisions.
    • Advocate confidently for your child.

    Knowledge won’t solve every problem, but it can stop families feeling powerless.


    You Are Not Alone

    If you’re feeling overwhelmed by the SEND system, please remember that thousands of families are navigating the same challenges.

    The law exists to protect children with SEND—but parents are rarely handed a guide explaining how it works.

    That’s one of the reasons AskEllie exists.

    We believe parents should understand their rights in plain English, without needing a law degree.


    Need More Help?

    If you’re looking for practical guidance on EHCPs, SEND law, DLA, PIP or navigating local authority decisions, visit AskEllie.co.uk.

    Together, we can make sure more families understand the rights they already have.