Category: Uncategorized

Struggling to afford a laptop or iPad for your child with SEND? You’re not alone — and thankfully, there is help available. Whether it’s for school, home learning, or communication needs, here’s how to apply for technology support for your child with special educational needs and disabilities (SEND).

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💡 Why These Devices Matter for SEND Children

Children with SEND often benefit hugely from having their own tech at home. It can help them:

• Access learning in a more comfortable, sensory-friendly way
• Use assistive apps (e.g., speech-to-text, timers, visual schedules)
• Build independence and confidence
• Communicate more easily with school or tutors

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✅ Who Might Be Eligible?

You don’t always need to be on benefits. The key is proving need, not just income.

You may be eligible if:

• Your child has an EHCP or ongoing diagnosis process
• They’re out of school or on reduced timetable
• They struggle to access learning due to anxiety, sensory needs or physical limitations
• You’re currently financially stretched (even if not on benefits)

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📅 Where to Apply for Support

⚡ 1. Family Fund

• Offers grants for tablets, iPads, laptops and more
• Must be under 17 and have a high level of additional need
• Not strictly income-based, but assessed
• Apply at: https://www.familyfund.org.uk

📈 2. School or Local Authority

• Some schools can fund or loan devices via the EHCP
• Ask for it to be written in under Section F or via an Annual Review
• If your child is out of school, request support under Section 19 of the Education Act 1996

📃 3. Charities & Local Schemes

Some local or national charities offer tech grants:

• Buttle UK: https://www.buttleuk.org
• Caudwell Children: https://www.caudwellchildren.com
• Glasspool: https://www.glasspool.org.uk
• Check local SENDIASS or your council’s Local Offer page too

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🔗 What You’ll Need

• Basic proof of your child’s needs (EHCP, diagnosis letter, support plan)
• Explanation of why a device is essential for learning or wellbeing
• Evidence of financial hardship (sometimes requested)

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🚀 AskEllie Can Help

If you’re writing to school, LA, or charity to ask for help, you can use our free template letters on AskEllie.co.uk. We also have a full video guide explaining these routes step-by-step.

Need personalised help? Use AskEllie+, our free AI assistant trained on SEND law and entitlements.

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🌟 Final Tip

Don’t give up if you’re refused the first time. Many parents apply more than once before being successful. Persistence and a clear explanation of your child’s needs can make all the difference.

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✉️ Share this blog with other parents who might need it — and let us know your experiences or questions in the comments below!

Families of children with disabilities often shoulder extra costs, stress, and barriers — making a proper holiday feel almost impossible. But there are grants, charities, and programmes that offer free or heavily subsidised breaks. Below is a guide to what is available now, how you can apply — and what you should ask your local authority to check

Provider / Programme	What They Offer	Eligibility / Notes	Link
Family Fund — Family Break Grants	Grants for accessible UK or overseas family breaks via partners like Haven, Butlin’s, etc.	Must be a low‑income family raising a disabled or seriously ill child. Breaks must be booked within 6 months. (Family Fund)	Family Fund — Family Breaks
The 3H Foundation — Holiday Grants	Awards between £250 and £550 toward UK accommodation cost.	For low income families with disabled members. Grants go to venue directly. (the3hfoundation.org.uk)	3H Foundation Holiday Grants
Henry Smith Charity — Holiday Grants for Children	Grants to youth groups / schools to take disabled children (<13) on trips	Only for organisations, not individual families. (Henry Smith)	Henry Smith Holiday Grants
Family Holiday Charity / Other Charities	Low‑cost or subsidised holiday accommodation for families, illness conditions	Check region and terms. (Family Holiday Charity)	Family Holiday Charity & Resources
Local Authority / LA Programmes	In some LAs, councils or “Local Offer” pages list holiday breaks, accessible grants, day visits, subsidised trips	Depends heavily on region; contact your LA’s children’s services or disability team	—

🏛️ What Your Local Authority Should Provide (Ask For These)

• Accessible holiday/short break schemes: Many LAs have “short breaks” budgets for children with disabilities.
• Respite or day‑trip programmes: Even if full holiday is not offered, councils sometimes provide day out schemes or smaller breaks.
• Grants via local charities: Some LAs partner with charities and allocate funding locally.
• Local Offer listings: Every LA has a Local Offer website — search “holiday breaks”, “short breaks”, “respite holidays”.
• Assistance via social care or disability services: If your child is receiving services, ask whether interventions include break support.

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🛠 How to Apply & Increase Your Chances

1. Keep an up-to-date list
   Bookmark the providers above and your LA’s offers. Grant windows often open and close fast.
2. Prepare documents
   Prove diagnosis, disability, extra needs, financial situation. Use doctor, therapist, school statements.
3. Write a strong story
   Explain why this break matters — to mental health, recovery, family connection. Give concrete detail.
4. Don’t pre‑book
   Wait until approval arrives. Many grants won’t reimburse bookings made beforehand.
5. Stay persistent
   If one round is closed, check back often. Some programmes reopen.
6. Use AskEllie+
   You can draft your application, check eligibility, and get help with wording via the AI tool.

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📌 Why This Matters

These holidays aren’t just “nice extras” — for many families they’re lifelines. A good break can help:

• Reduce burnout and improve mental health
• Let your child feel included and rested
• Rebuild relationships without constant stress
• Give you energy to continue fighting for justice in education, health, and social care

Recent statements from the Institute for Fiscal Studies (IFS) and wider media coverage have revealed worrying signs that the government may be preparing to make major changes to how support for children with SEND (Special Educational Needs and Disabilities) is delivered in England.

From DLA (Disability Living Allowance) to EHCPs (Education, Health and Care Plans), the entire system may be on the verge of what some experts are calling “Welfare Reform 2.0”.

But what does that actually mean for families?

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What’s Being Proposed?

The IFS recently stated there is a “strong case” for the government to review all support systems for SEND children. This includes education support (like EHCPs), transport, and disability benefits such as DLA.

They project that SEND spending could rise to £21 billion by 2029, suggesting that the current model is financially unsustainable. While the IFS is not a government body, its recommendations often shape future policy.

This has sparked concerns that instead of improving support, the government could:

• Tighten eligibility for EHCPs
• Replace DLA with something closer to PIP (Personal Independence Payment), which has tougher assessments
• Push for more “cost-effective” local mainstream placements, even where specialist provision is needed

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What Are the Risks?

The biggest concern is that this reform will be driven by cost-cutting, not children’s needs.

We’ve seen this before with the shift from DLA to PIP for adults, which led to:

• Higher rejection rates
• More appeals
• Stressful assessments that don’t always recognise invisible disabilities

If the same model is applied to children, it could mean:

• More families losing access to essential benefits
• A reduction in 1:1 or tailored school support
• Local authorities rewriting EHCPs with vague language to save money
• Fewer specialist placements approved

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What Could It Mean for Your Family?

If you rely on:

• DLA to afford daily care and travel costs
• EHCPs to secure school support or transport
• Specialist settings for your child to access education safely

…this could all be affected.

It might mean:

• Reassessment of your child’s benefits
• Increased pressure to prove their needs all over again
• Longer waiting times for support
• More tribunals and appeals

For families already burned out by the current system, this could be devastating.

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How to Prepare

1. Know your rights — Learn about Sections 19, 21, 42, and 66 of the Children and Families Act.
2. Review your EHCP now — Is Section F specific and legally binding? If not, get it tightened.
3. Gather evidence — From therapists, teachers, and medical professionals.
4. Use tools like AskEllie+ — You can review your EHCP, generate letters, and get step-by-step support.
5. Join local parent forums and national campaigns — You’re not alone.

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Final Thoughts

Families of children with SEND have been fighting for years just to access what the law says their children are entitled to. Now it feels like we’re facing another storm.

As the government looks to “reform” SEND and disability support, it’s vital that families stay informed, stay united, and continue to speak up.

Because if we don’t, who will?

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Free Support Use AskEllie+, the AI tool built by a parent, not a company, to help you navigate the EHCP and SEND system with confidence. Available now on ChatGPT.

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Sources:

• Institute for Fiscal Studies (ifs.org.uk)
• The Guardian
• TES
• Special Needs Jungle

The fear of having your child’s transport withdrawn is very real for many parents. But before panic sets in, it’s worth pausing and looking at what the law actually allows, what local authorities might argue, and what you can do to protect your child’s rights.

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What the Law Says: The Parent’s Side

1. Statutory duty under Section 508B / Schedule 35B (Education Act 1996)
   Local authorities have a legal duty to provide free, suitable home-to-school transport to “eligible children,” which includes children who cannot reasonably be expected to walk to school because of their SEN, disability, or mobility needs. childlawadvice.org.uk+2GOV.UK+2
2. “Suitable travel arrangements” must match the child’s needs
   It’s not enough to just provide some form of transport — what’s offered must be safe, in reasonable comfort, and manageable given the child’s condition (e.g. behaviour, sensory needs). GOV.UK+2childlawadvice.org.uk+2
3. Transport should not be withdrawn lightly, especially for behavioural issues tied to SEND
   Guidance and legal commentary caution that transport should only be withdrawn as a last resort, after all efforts to manage behaviour have been exhausted. Special Needs Jungle
4. Rights to appeal and review
   If transport is refused or withdrawn, parents can request a review, escalate to independent appeal panels, even possibly raise a case for judicial review if the decision appears unlawful. childlawadvice.org.uk+2ipsea.org.uk+2
5. Limits of transport duty for older students
   Some legal cases show that when learners reach ages 16–18, LAs may adjust transport policies. For example, Leicestershire’s change to replace transport with personal budgets was challenged but not struck down — the courts noted LAs have discretion over scarce public resources. Local Government Lawyer

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What Local Authorities Might Argue (Their View)

1. Behaviour & safety
   LAs may argue a child’s behaviour on transport jeopardises the safety of others, or that repeated misbehaviour is beyond what they can reasonably manage. Some policies reserve the right to suspend or withdraw transport on those grounds. leeds.gov.uk+2City of London+2
2. Resource pressures and cost
   Financial constraints are often cited — councils may claim that the cost of providing individualised transport is unsustainable, especially as numbers grow and fuel/staff costs rise.
3. “Nearest suitable school” arguments
   Some LAs will argue the school named in the EHCP is not considered the “nearest suitable school” under transport policy, or they’ll ask parents to accept a nearer (but less preferred) setting to limit transport duty. Special Needs Jungle+2childlawadvice.org.uk+2
4. Temporary withdrawal rather than permanent
   In some policies, transport may be withdrawn temporarily while investigations or behaviour interventions are tried — although this is controversial when children have significant needs. eani.org.uk+2Special Needs Jungle+2

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The Risks & Red Flags to Watch

• Transport being withdrawn mid-year without adequate notice or consultation
• Behaviour being used as a blanket reason to cancel transport rather than addressing root causes
• Lack of clarity around appeal processes or ways to challenge the decision
• Using discretionary powers (Section 508C) to deny transport even when statutory duty may apply
• Not factoring in SEND or health-related travel needs (e.g. a child who physically can’t walk certain routes)

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What You Can Do to Protect Your Child

1. Check your LA’s transport policy
   Make sure they publish their criteria, appeal process, and how they deal with behaviour-related withdrawals.
2. Gather evidence
   Medical reports, mobility assessments, behaviour reports, or statements from professionals can support your case that transport is essential.
3. Request a review / appeal
   Use formal review stages, independent appeals panels, and don’t hesitate to escalate.
4. Challenge behaviour-based withdrawal
   Highlight that behaviour may be symptomatic of SEND and push for supportive measures rather than removal of transport.
5. Raise complaints & legal routes
   If the decision seems unreasonable or unlawful, escalate to the Local Government Ombudsman or explore judicial review.
6. Use tools to support you
   Platforms like AskEllie+ can help you draft letters, understand your rights, and provide a framework for challenging transport decisions.

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Why This Matters More Now

With budgets squeezed and more pressure on LAs, there’s concern that removing transport is seen as an “easy cut.” Add in emerging use of AI behind the scenes — councils may increasingly rely on software to decide cutbacks without human oversight. Meanwhile, headlines and reports sometimes paint supportive parents as being radical just for asking for rights.

For children with SEND, transport isn’t a luxury — it can make the difference between accessing education or being stranded at home. It’s essential to stay informed, push back, and ensure the law is upheld.

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If you’re a parent of a Roblox-obsessed child, you’re not alone. Roblox has become one of the most popular platforms for children — especially those with SEND — to socialise, create, and play. But behind the fun is a worrying truth: your child could spend hundreds or even thousands of pounds before you realise it.

Why Is This Happening?

Roblox uses its own in-game currency called Robux, which doesn’t look or feel like real money to children. It’s bright, colourful, and addictive. Many games on the platform are designed with endless opportunities to buy skins, upgrades, and perks — and the more your child plays, the more they’re nudged toward spending.

To make matters worse:

• There are no in-built spending limits.
• Refunds are rarely granted, even in obvious cases of unauthorised purchases.
• Payment platforms like Apple and Google often side with the app developer, not the parent.

One parent recently told us their child spent over £4,000 in Roblox without their knowledge — money that was never refunded.

Why It Hits SEND Families Harder

Children with autism, PDA, ADHD and other neurodevelopmental differences often experience high levels of focus and emotional regulation difficulties. The instant rewards and fast feedback loops of games like Roblox make them especially vulnerable to compulsive spending.

What Makes It Even Worse

Roblox and other platforms profit from this confusion:

• Robux masks the real cost.
• Parents are rarely notified in real time.
• Game developers design microtransactions to appear harmless, fun, or even essential.

It’s a perfect storm — and companies are profiting from your child’s lack of financial awareness.

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5 Things You Can Do Right Now To Protect Yourself

1. Turn on “Ask to Buy” (Apple) or Family Link (Android)
   • Require parental approval for every purchase.
2. Disable in-app purchases entirely
   • Go into your phone or tablet settings and switch them off if possible.
3. Use gift cards instead of linked cards
   • Only top up Robux with a pre-paid gift card you control.
4. Check purchase history regularly
   • Look for strange or repeat purchases on Apple/Google accounts.
5. Talk to your child
   • Help them understand that Robux = real money. Use simple visuals or comparisons if needed.

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What To Do If It Already Happened

• Contact your bank immediately to flag any suspicious charges.
• Submit refund requests to Apple, Google or Roblox — even if they say no at first.
• Consider raising a complaint with the Financial Ombudsman if your bank won’t help.

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The Bigger Picture

Platforms like Roblox have created a digital playground with no fences. While it’s fun and creative, it’s also a business — and children are the target market. As parents, we need to stay one step ahead.

If you’ve been affected, or want step-by-step support to protect your family from future issues, our free AI assistant AskEllie+ is here to help.

Visit AskEllie.co.uk or search “AskEllie+” inside ChatGPT’s Explore tab.

Let’s protect our kids — and our wallets.

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AskEllie+ is a free AI assistant created by SEN parents, for SEN families. It provides clear, legal-based answers to support you through EHCPs, school issues, and now — digital safety too.

This week, The Times published an article titled “Alarm at chatbot’s legal advice to parents of special needs pupils” about our platform, AskEllie. We appreciate that these conversations are happening — but we also feel it’s important to clarify what AskEllie actually is, why it exists, and how it serves thousands of families who have been left behind by the current system.

Why AskEllie Exists

AskEllie is not a company or a commercial product. It’s something I built, as a father, out of desperation. When our family was trying to navigate the EHCP process, we faced dead ends, long waits, and a system that felt impenetrable. Like so many parents, we were overwhelmed and unsupported.

Rather than accept that, I used my tech background to create a free platform where families can access clear, structured information about their rights, deadlines, and processes. There are no ads, no data collection, no financial motive — just a tool built to help families who are often exhausted, frightened, and alone.

AskEllie Does Not Replace Legal Advice

We take accuracy and safety seriously. AskEllie does not offer bespoke legal advice or representation, and we have never claimed to. The platform explicitly tells users this at every opportunity.

What it does provide is general information from public sources — government websites, IPSEA, SOS! SEN, the SEND Code of Practice, and other trusted resources — structured through AI so that it’s easier for parents to understand and act on.

For many families, this isn’t a luxury; it’s the only option. Even national charities and law firms are overwhelmed. The idea that it’s somehow “safer” to leave desperate families with no help at all is what’s truly dangerous. AskEllie gives parents a starting point, not a replacement for qualified professionals.

We’ve Invited Experts In — Many Never Replied

One thing the article left out is that we have repeatedly invited solicitors, charities, and government officials to work with us to shape AskEllie responsibly. We’ve written to countless professionals asking for input, collaboration, and oversight. Most never responded.

We are not hiding. We are asking for regulation, accountability, and collaboration to make sure AI is used ethically and safely.

Serving Thousands of Parents

AskEllie has grown because it works. We now reach thousands of parents on TikTok alone, where videos explaining SEND law and parental rights have been viewed over half a million times. These are not sensationalist posts — they’re calm, evidence-based explanations designed to counter misinformation at a time when parents are more anxious than ever.

Every day, we receive messages from parents who feel abandoned, ignored, or threatened with fines and prosecutions while their children’s needs go unmet. Many are burnt-out mums just trying to survive the day. These are the people we built AskEllie for.

AskEllie+ – Our Next Step

We’ve just launched AskEllie+ — our most advanced version yet — now free on ChatGPT. It helps parents understand their rights, respond to local authority letters, and even draft EHCP sections using up-to-date UK law and guidance.

This is especially important now, because local authorities themselves are beginning to experiment with AI to draft EHCPs. While that might sound efficient, it raises real concerns:

• How will an AI system built by an LA understand the nuances of your child’s individual needs?
• Will it truly benefit families — or streamline processes in the LA’s favour?
• How do parents fight back when the other side is using advanced tech?

AskEllie+ is our answer to that. It’s built for parents, not institutions. It’s about empowerment, not automation.

The Real Danger

A solicitor quoted in the article called Ellie “dangerous.” We respectfully disagree. What’s dangerous is leaving families with no help at all.

The real-world consequences of the current system are devastating. Families go years without support. Children fall through the cracks. Parents end up at breaking point. AskEllie gives them a foothold. It helps them understand the law, organise their case, and push back — calmly and lawfully.

Moving Forward

We are proud of what AskEllie represents: ordinary people using technology ethically to close gaps in a broken system. We welcome constructive dialogue and accountability. But we won’t apologise for trying to help families who have nowhere else to turn.

If you’re a parent struggling through the SEND process, AskEllie is free and always will be. We’re here to make sure you’re not alone.

👉 Try AskEllie+ for free on ChatGPT – Click here to start

We’re excited to announce something big:
AskEllie+ is now live on ChatGPT – and it’s completely free to use.

This is the next chapter for Ellie. Built by parents, for parents, AskEllie has always aimed to make navigating the EHCP and SEND system easier, clearer, and less isolating. Now, with AskEllie+, we’re stepping things up with smarter, faster, and more personalised help – available instantly through ChatGPT.

💡 So… what’s AskEllie+?

AskEllie+ is our latest AI assistant, designed to give you even more accurate, compassionate, and action-focused support with things like:

• EHCP assessments and reviews
• Refusals to assess or issue
• Section F enforcement
• Writing parent views
• Understanding legal deadlines
• Appealing to the SEND tribunal
• Drafting responses to local authorities and schools
• Uploading letters for analysis and suggested replies

All of this is grounded in current UK SEND law – including the Children and Families Act 2014, SEND Regulations 2014, and the SEND Code of Practice 2015 – and backed by trusted sources like IPSEA, SOS!SEN, and .gov.uk.

🚀 What’s New in AskEllie+?

With AskEllie+, we’ve added powerful new features based on real parent feedback:

✅ Upload and Analyse Letters
Paste or upload letters from your LA or school – Ellie+ will summarise them and suggest how to respond, step by step.

✅ More Personalised Advice
Ellie+ adapts to your child’s situation (e.g. EBSA, PDA, ASD, school refusal) and gives tailored answers, not generic info.

✅ Faster and Smarter Responses
Running on GPT-4, AskEllie+ offers clearer, more confident guidance instantly.

✅ Free and Easy to Use
There’s no signup, no fee, no catch. Just open the ChatGPT link, start talking to Ellie, and get the help you need.

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🔗 Try AskEllie+ Now

👉 Click here to start a conversation with AskEllie+ on ChatGPT

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❤️ Why We Built This

We know how hard it is. We’re parents too.
The EHCP process can feel impossible to navigate, especially when you’re doing it alone, under pressure, and while advocating for a child who just needs the right support.

AskEllie+ is here to change that – by giving you fast, clear, and legally accurate help at your fingertips.

No jargon. No judgement. Just the answers you need, when you need them.

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If you find it helpful, please share it with others – and come follow us over on TikTok at @AskEllieAI where we share daily tips, relatable stories, and updates.

We’re just getting started.

—
The AskEllie Team

Disclaimer: Ellie provides information based on trusted sources and real parent experiences. While we do our best to keep everything accurate and up to date, mistakes can sometimes happen. For important decisions, please double-check with a qualified professional or trusted organisation. Ellie is here to guide and support you — not replace expert advice. Your information is private, secure, and never shared.

If you’re a parent navigating the SEND system, I want to speak directly to you.

This week, a national newspaper got in touch asking questions about AskEllie — the free AI assistant I built to help families like mine get clear, trusted information about EHCPs, school support, and your rights. They’ve asked about my qualifications, about TikTok posts, and even whether a dad like me should be building something like this at all.

So I’m writing this before their article is published. Not to fight fire with fire — but to be open, transparent, and tell the full story in my own words. Because you deserve to know what this is really about.

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Why I Built AskEllie

A couple of years ago, my family was in crisis. Both of our sons have additional needs, and trying to get the right support for them through the EHCP process was a nightmare. We were left to figure it all out ourselves. No one explained the deadlines. No one told us our rights. We were exhausted, stressed, and constantly being fobbed off.

So I decided to do something.

I used my tech background to build a free, easy-to-use website where other parents could get instant answers based on UK SEND law and government guidance. It doesn’t collect your data. It doesn’t sell anything. And it doesn’t pretend to replace legal advice. It just gives you a place to start when you’re being ignored, gaslit, or drowning in red tape.

I called it AskEllie. And somehow, it started to grow.

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Is It Legal Advice? No. Is It Helpful? Absolutely.

Let me be clear: I’m not a solicitor. I’ve never claimed to be. The site says so clearly. Everything AskEllie shares is based on public sources like gov.uk, the SEND Code of Practice, and charities like IPSEA and Contact. It’s meant to support families, not replace professionals.

But here’s the truth: most families can’t afford legal advice. Many can’t even get help from charities because they’re overwhelmed too. So I built something to fill that gap — responsibly, ethically, and openly.

And now, major voices in the sector agree.

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Who’s Backing This?

Access to Justice Foundation, one of the UK’s leading organisations for legal access, has stepped forward to support the project and explore how we grow it safely.

An MP has asked us to collect parent stories to feed into the next Parliamentary SEND review. We’ve already received hundreds.

Helen Hayes MP, Chair of the Education Committee, has welcomed written evidence from AskEllie for future inquiries.

And a member of the House of Lords is currently arranging a meeting to explore how AskEllie could help families at scale.

None of this is about ego. It’s about showing that when the system fails, families step up. And when we embrace innovation, lives change.

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What About TikTok?

One video I posted — titled “Don’t send your kids to school” — has been mentioned as potentially scaremongering. Here’s the truth:

At the time, TikTok was full of false rumours about school lockdown drills and children being taken without consent. Parents were terrified. My video used the same headline that was already trending — not to add panic, but to calm it down.

If you watch the full video, I explain clearly that there was no legal basis for the panic. I gave parents facts, reassured them, and encouraged calm. That’s why it was seen by over half a million people. It resonated because it brought clarity when people needed it most.

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The Real Danger? Doing Nothing.

One solicitor told the journalist AskEllie was “dangerous.” I respectfully disagree. What’s dangerous is parents having nowhere to turn. No solicitor. No charity support. Just closed doors and confusing jargon.

AskEllie isn’t perfect, but it’s helping thousands. I get messages every day from mums and dads saying, “I finally understand what to do.” Or, “You helped me challenge something that wasn’t right.”

This is how we change things.

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What Happens Next

We are improving AskEllie every day. We’re adding new tools, blogs, template letters, and opportunities for collaboration. We want professionals to help us build this together. I’m not here to replace anyone. I’m here because, like you, I was tired of waiting for someone else to fix things.

From the printing press to the internet, every major leap in access to information has faced resistance at first. But we all know that empowering families with knowledge changes everything.

This is just the beginning.

Thank you for believing in AskEllie.

Oliver Lee
Founder, AskEllie.co.uk

Introduction Recently, headlines have surfaced suggesting that former U.S. President Donald Trump and his team are planning to link paracetamol (known as acetaminophen in the U.S.) use during pregnancy to an increased risk of autism in children. This has understandably caused concern and confusion among parents and caregivers. As with many discussions about autism, these claims come with a mix of science, speculation, and emotion. So what does the evidence actually say? And what should parents really take away from this?

What Are the Claims? According to reports, Trump advisors are preparing to issue public health guidance suggesting that:

• Pregnant women should avoid paracetamol unless treating high or serious fevers.
• There may be a link between prenatal paracetamol use and increased risk of autism or ADHD.
• A supplement called leucovorin (a form of folate) may be proposed as a treatment for some autism-related symptoms.

These ideas are reportedly tied to a broader autism policy platform being developed for a future presidential campaign.

What Does the Science Say? There have been studies suggesting a correlation between paracetamol use during pregnancy and increased risks of neurodevelopmental conditions like autism or ADHD. However:

• Correlation is not causation. Just because two things happen together does not mean one causes the other.
• Some large-scale studies (such as sibling-controlled studies) have found no increased risk when controlling for genetic and environmental factors.
• The risks, if they exist, appear to be small and dependent on factors like dosage, duration, and underlying health conditions.
• Medical professionals still consider paracetamol one of the safest pain relievers to use during pregnancy when taken as directed.

What Is Leucovorin and Is It a Cure? Leucovorin is a form of folinic acid (a type of folate) sometimes used in clinical trials to address metabolic or mitochondrial issues observed in some children with autism. Early research has shown some potential improvements in communication and behaviour, but:

• It is not a cure for autism.
• It may help a subset of autistic children, particularly those with folate transport abnormalities.
• Further research is ongoing and it is not a widely accepted or standard treatment.

What Parents Should Know Right Now

1. Don’t panic. No formal policy has been announced, and the evidence being referenced is still highly debated.
2. Paracetamol is still widely regarded as safe during pregnancy when used correctly. If you’re pregnant, always speak to your doctor before making changes to medication.
3. Beware of fear-based messaging. Autism is not caused by bad parenting or a single medication. It’s a complex interplay of genetics and environmental factors.
4. Be cautious of any “cure” language. Autism is not a disease. Supporting autistic people means meeting their needs, not erasing their identities.
5. Focus on support, not blame. Policies and headlines that stir fear or encourage blame do not help children or families.

Final Thoughts We need more transparency, more research, and more compassion in how we talk about autism. Parents deserve clarity, not confusion. And autistic people deserve understanding and respect, not policies rooted in fear or stigma.

If you’re feeling overwhelmed by the headlines or struggling with support for your autistic child, you’re not alone. AskEllie.co.uk is here to help families navigate the complex world of SEND, EHCPs, and educational rights in the UK. Come by and see us.

What Is EBSA?

EBSA stands for Emotionally Based School Avoidance — when a child or young person struggles to attend school because of underlying emotional distress. It’s often misunderstood as “school refusal,” but that label blames the child. The truth is, EBSA is not defiance — it’s anxiety.

EBSA can affect any child, but it’s especially common in those with:

• Autism (including PDA profiles)
• ADHD
• Sensory Processing Difficulties
• Anxiety or trauma history
• Undiagnosed special educational needs

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How to Recognise EBSA

Many children mask their distress, especially at school. But the signs often show up before and after the school day.

Common signs of EBSA:

• 😢 Tears, stomach aches or headaches before school
• 😴 Trouble sleeping on school nights
• 🧍‍♀️Clinginess or refusal to get ready in the morning
• 💥 Meltdowns or shutdowns after school
• 🙅 Repeated absences or lateness
• 😔 Low self-esteem, saying things like “I’m stupid” or “No one likes me”
• 📉 A drop in academic progress or energy

If your child says “I hate school” every day — but they used to love learning — this could be EBSA.

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Why It Happens

Children experiencing EBSA are often in environments that aren’t meeting their needs. They may feel overwhelmed by:

• The sensory environment (noise, lights, smells, uniforms)
• Social pressure or bullying
• Adults who don’t understand them
• Tasks that feel impossible or humiliating

And when no one listens, that emotional distress can become chronic.

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How to Talk to School About EBSA

Start by sharing what you see at home. Masking is real — and schools need to hear it.

🗣️ Use language that reflects anxiety and distress, not “bad behaviour”
📹 Keep a diary or record videos of what happens before and after school
📧 Put everything in writing — email the SENCO and class teacher regularly
📄 Request a formal meeting and ask for minutes

Ask directly:

“Have you considered EBSA as a possible explanation for what’s going on?”

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What Schools Should Do

Once EBSA is identified, schools should:

• Carry out an individual risk assessment
• Offer a tailored support plan to help the child feel safe
• Consider reduced or flexible timetables only as a short-term, supportive step
• Work with CAMHS, Educational Psychologists, or Specialist Teachers

And crucially: Schools must not ignore it.

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What If the School or LA Doesn’t Help?

Here’s where your rights matter:

📘 Section 19 of the Education Act:

If your child can’t attend school for more than 15 days (consecutive or not), the local authority has a legal duty to provide suitable alternative education.

This might include:

• 1:1 tuition at home
• Online learning
• Specialist placements

If they fail to do this, you can:

• Request help via the SEND team
• Ask for an EHCP (Education, Health & Care Plan) assessment
• Submit a complaint or go to SENDIST tribunal

This is where AskEllie can help — we explain your rights and guide you step by step.

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You’re Not Alone

EBSA is heartbreaking — for both the child and the parent.
You’re not overreacting. You’re not a bad parent. You’re responding to your child’s distress with care.

Thousands of families are walking this path too — quietly, exhausted, and often blamed.

But there is support out there.
You don’t have to do this alone.

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💛 Need help navigating the system?

We’ve created AskEllie to support families like yours — with legal tools, emotional guidance, and scripts to use with school and the LA.

➡️ Come see us at www.askellie.co.uk
You’re not powerless — not with the truth on your side.